George Clooney could help

[eman]

Sounds like Georgle Clooney went through this very nightmare we are all going through. I wish he would start a foundation. We need better tests, and more research into detection and repair. I think I may write a letter, but I doubt he would ever see it.

[Concerned Gal]

George's leak was a result of trauma during filming of Syriana (or another film). Something about falling off a chair. I heard a really good audio interview once where he talked about it. Might be worth doing a search for those who are interested. And Eman, it's worth a try!

[jimc]

I searched for more info on this, and didn't find much. This article (http://www.femalefirst.co.uk/entertainment/87122004.htm) is interesting because it claims that Clooney is bitter that the doctors he saw first wouldn't take him seriously. "A lot of the doctors were like, 'You've got a headache. Go home.' I understand what they were thinking: 'Oh, he's an actor. He's being dramatic.'"

The most interesting thing I uncovered is the fact that many of the interviews Clooney gave to different publications have the same questions and answers, verbatim. For instance, at least half a dozen supposedly different interviews contain this answer from Clooney: "...and ended up with what they call CSF leak, which is a cranial spinal fluid leak — good fun. I highly recommend it for everybody out there."

It appears that many of these "interviews" consisted of the newspaper or magazine publishing a list of questions and answers they got from Clooney's publicist. Shocking, just shocking (not really).

[eman]

There is more than just that one out there. I wonder if Clooney even knows that people actually suffer from this condition on a chronic level. We need a foundation. We need better tests and treatments.

[Tamaretta]

I agree it is worth a shot to contact him! Maybe we should have a George Clooney letter writing campaign? I have been considering contacting the talk shows with my daughter's horror story (I only gave you guys a VERY short abbrev version!) to get the word out....Not sure if they would be interested, but I bet there are more kids out there too...but when "the experts" tell you nothing is wrong over and over and over, you believe them..for a while. Then you realize that you KNOW your kid better than every doctor combined. It is absolutely horrible what we all go through--and alot of the time it is nothing more than the doc's ego that stands in the way! Anytime any doctor tells me what the "medical textbooks" state, I usually come back with "Tell me where in the textbook is Taylor's case?" If you can't think outside the box, I don't need you on my daughters team. "NEXT"

[eman]

Tamaretta,

the bottom line is CSF leak detection and treatment are barely out of the stone age (quoting guinepig). If we could get someone famous that went through a version of our ordeals, maybe we could actually get some research and progress, like Christopher Reeve did, or Michael J Fox's contribution to parkinsons. We need help, not just a couple of neurologists/surgeons interested in the syndrome. This is a serious condition. Many people need help.

I wonder how we could get through to Clooney. I don't know for a fact, but I believe Schievink fixed him. I read he got it figured out at Cedars Sinai. Clooney sure seems like a nice guy from his interviews, etc...

eman

[eman]

Tamaretta,

Here's all the Clooney contact info. Talk shows would be an awesome Idea. You should pursue that, something might happen...

Erich


Publicist address:
George Clooney
c/o Stan Rosenfield & Associates,
2029 Century Park East - Suite 1190,
Los Angeles, CA 90067
USA.
tel 310-286-7474 fax. 310-286-2255

Agent address:

Bryan Lourd
Creative Artists Agency
2000 Avenue of the Stars
Los Angeles, CA 90067
tel: 424.288.2000 fax: 424.288.2900
http://www.caa.com

George Clooney's Production Company:

Smoke House
c/o Warner Bros.
4000 Warner Blvd., Bldg. 15
Burbank, California 91522
USA

tel: 818 954 4840
fax: 818 954 4860