Grrr.. he says that there is no such thing!

[deettah]

I saw my neurologist today and he wanted to just give me meds for the headaches and physical therapy. I asked him about Fibro and he said that "it is a loose term used to describe a multitude of symptoms with no other explanation" and he basically said that there is no such thing. So fristrated as I was I called my GP and asked for a referral to a rheumy. Does this happen often where MD's think it's just no big deal? I asked him abot all my other symptoms and he said that he thinks it is all stemming from my migraines and that he will have me better in a few weeks. After 12 years of migraines and body pain he is going to miraculously cure me in 4 weeks!?!?:confused:

[Fayelle]

LOL

Yep sounds familiar....

About 3 plus years ago I went completely hypothyroid and diabetic which was causing major flares and symptoms of their own some were neurological in nature.....I was seeing a neuro who turned out to be a complete jerk....He said exactly the same thing about fibro and chronic myofascial pain.....Then he did an emg and went on to tell me I needed a psychiatrist and that he could not help me.....

After I started having the hypo and diabetes treated things got better symptom wise....When I started taking a low dose sleep aid my neuro symptoms got better....He was under the impression that a sleep issue was my entire problem, when the cpap did not make any real difference he gave up on me.....

I switched neuro's and he has not written me off.....So well thats a plus anyway.....

I feel for you....you will run into those docs who are of the belief that its a made up or waste basket diagnosis....I think the younger GP's are getting better training on it....My doc is in her 30's and a great GP who is treating me for the fibro, she is the first one who ever mentioned it to me out of all of the doctors I have seen in all of the years I have been trying to figure out what is going on with me.....She is also sympathetic towards my symptoms etc....

Also if you are in a bigger area there are actual centers that specialize in fibro....There is a fibro center in Utah but I am not sure where else......

Don't take it too hard, its unbelievable when they say it, your jaw hits the floor but ya know I suppose you get used to it.....

Fay

[deettah]

Yes Fay, I was so angry that I almost started crying. The fact that he could stare me in the face and tell me that my tremors, stuttering, clumsiness, back pain and everything else comes from my "neck problem" and that all he needs is 4 weeks. I wanted to punch the guy. I didn't know I had a neck problem. I have stiffness but no "problem". Jeez.

[BrokenBladder]

All of this sounds like what I've been through. There are doctors who believe in FMS and those who don't. The ones who don't either treat us like we're crazy or they blame it on something else all together.
I agree with Fay I think the younger doctors are better educated about FMS, but you can't always pick which doctor you will have, especially if you end up in the ER at the hospital!! That has happened to me numerous times and I'm always treated as a "drug seeker" or they do things like run a brain scan on me. LOL!!