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View Full Version : A Letter From Your Brain...remember This Letter??


Gabrielli
04-13-2007, 12:07 AM
This was a sticky post before the server went down last year...I asked that it be put back up...till then I printed it for everyone...




A Letter From Your Brain


--------------------------------------------------------------------------------



Hello,

I'm glad to see that you are awake! This is your brain talking. I had to find some way to communicate with you. I feel like I barely survived WWIII and am still not quite all in one piece. That's why I need you. I need you to take care of me.

As time passes and you and I feel better and better, people, even doctors, will tell you that we are fine, "it's time to get on with life." That sounds good to me and probably even better to you. But before you go rushing back out into that big wide world, I need you to listen to me, really listen. Don't shut me out. Don't tune me out. When I'm getting into trouble I'll need your help more than I ever have before.

I know that you want to believe that we are going to be the same. I'll do my best to make that happen. The problem is that too many people in our situation get impatient and try to rush the healing process; or when their brains can't fully recover they deny it and, instead of adapting, they force their brains to function in ways they are no longer able too. Some people even push their brains until they seize, and worse... I'm scared. I'm afraid that you will do that to me. If you don't accept me I am lost. We both will be lost.

How can I tell you how much I need you now? I need you to accept me as I am today... not for what I used to be, or what I might be in the future. So many people are so busy looking at what their brains used to do, as if past accomplishments were a magical yardstick to measure present success or failures, that they fail to see how far their brains have come. It's as if here is shame, or guilt, in being injured. Silly, huh?

Please don't be embarrassed or feel guilt, or shame, because of me. We are okay. We have made it this far. If you work with me we can make it even further. I can't say how far. I won't make any false promises. I can only promise you this, that I will do my best.

What I need you to do is this: because neither of us knows how badly I've been hurt (things are still a little foggy for me), or how much I will recover, or how quickly, please go s-l-o-w-l-y when you start back trying to resume your life. If I give you a headache, or make you sick to your stomach, or make you unusually irritable, or confused, or disoriented, or afraid, or make you feel that you are overdoing it, I'm trying to get your attention in the only way I can. Stop and listen to me.

I get exhausted easily since being hurt, and cannot succeed when overworked. I want to succeed as much as you do. I want to be as well as I can be, but I need to do it at a different pace than I could before I got hurt. Help me to help us by paying attention and heeding the messages I send to you.

I will do my part to do my very best to get us back on our feet. I am a little worried though that if I am not exactly the same... you will reject me and may even want to kill us. Other people have wanted to kill their brains, and some people have succeeded. I don't want to die, and I don't want you to die.

I want us to live, and breath and be, even if being is not the same as it was. Different may be better. It may be harder too, but I don't want you to give up. Don't give up on me. Don't give up on yourself. Our time here isn't through yet. There are things that I want to do and I want to try, even if trying has to be done in a different way. It isn't easy. I have to work very hard, much harder, and I know that you do too. I see people scoff, and misunderstand. I don't care. What I do care about is that you understand how hard I am working and how much I want to be as good as I can be, but I need you to take good care of us, as well as you can do that.

Don't be ashamed of me. We are alive. We are still here. I want the chance to try to show you what we are made of. I want to show you the things that are really important in life. We have been given another chance to be better, to learn what is really important. When it is finally time for our final exit I would like to look back and feel good about what we made of us and out of everything that made up our life, including this injury. I cannot do it without you. I cannot do it if you hate me for the way being injured has affected me and our life together. Please try not to be bitter in grief. That would crush me.

Please don't reject me. There is little I can do without you, without your determination to not give up. Take good care of us and of yourself. I need you very much, especially now.


©1996 Stephanie St. Claire

May be reprinted for personal, not for profit use.




ooxx
mimi

JulieNH
04-13-2007, 09:00 AM
Thanks Mimi,
Julie

tg_is_me
04-13-2007, 09:29 AM
Thanks for that Mimi, I haven;t read that before. It really is food for thought for us all.
Love Tina xx

Gabrielli
04-13-2007, 11:39 AM
Still waiting to hear from Mike so this can be put back on Sticky...I contacted him three or more day's ago...so others please contact him too about this...would be nice to see it up again...thanks

ooxx
mimi

mamakat
04-13-2007, 11:48 AM
Good Job! And thanks. Kat

Suzanne*Canada
04-13-2007, 12:42 PM
Mimi there is a copyright on that letter.... let me go and look it up.. the Author asked that this letter NOT be shared without the copyright attached.. let me go find it and i will post it here when i do.

Suzanne

Suzanne*Canada
04-13-2007, 12:46 PM
Here is the Letter From Your Brain WITH the appropriate copyright attached... she got very upset that this was being shared without the copyright.. so let's fix that and give credit where credit is due!:)

Hello,

I'm glad to see that you are awake! This is your brain talking. I had to find some way to communicate with you. I feel like I barely survived WWIII and am still not quite all in one piece. That's why I need you. I need you to take care of me.

As time passes and you and I feel better and better, people, even doctors, will tell you that we are fine, "it's time to get on with life." That sounds good to me and probably even better to you. But before you go rushing back out into that big wide world, I need you to listen to me, really listen. Don't shut me out. Don't tune me out. When I'm getting into trouble I'll need your help more than I ever have before.

I know that you want to believe that we are going to be the same. I'll do my best to make that happen. The problem is that too many people in our situation get impatient and try to rush the healing process; or when their brains can't fully recover they deny it and, instead of adapting, they force their brains to function in ways they are no longer able too. Some people even push their brains until they seize, and worse... I'm scared. I'm afraid that you will do that to me. If you don't accept me I am lost. We both will be lost.

How can I tell you how much I need you now? I need you to accept me as I am today... not for what I used to be, or what I might be in the future. So many people are so busy looking at what their brains used to do, as if past accomplishments were a magical yardstick to measure present success or failures, that they fail to see how far their brains have come. It's as if here is shame, or guilt, in being injured. Silly, huh?

Please don't be embarrassed or feel guilt, or shame, because of me. We are okay. We have made it this far. If you work with me we can make it even further. I can't say how far. I won't make any false promises. I can only promise you this, that I will do my best.

What I need you to do is this: because neither of us knows how badly I've been hurt (things are still a little foggy for me), or how much I will recover, or how quickly, please go s-l-o-w-l-y when you start back trying to resume your life. If I give you a headache, or make you sick to your stomach, or make you unusually irritable, or confused, or disoriented, or afraid, or make you feel that you are overdoing it, I'm trying to get your attention in the only way I can. Stop and listen to me.

I get exhausted easily since being hurt, and cannot succeed when overworked. I want to succeed as much as you do. I want to be as well as I can be, but I need to do it at a different pace than I could before I got hurt. Help me to help us by paying attention and heeding the messages I send to you.

I will do my part to do my very best to get us back on our feet. I am a little worried though that if I am not exactly the same... you will reject me and may even want to kill us. Other people have wanted to kill their brains, and some people have succeeded. I don't want to die, and I don't want you to die.

I want us to live, and breath and be, even if being is not the same as it was. Different may be better. It may be harder too, but I don't want you to give up. Don't give up on me. Don't give up on yourself. Our time here isn't through yet. There are things that I want to do and I want to try, even if trying has to be done in a different way. It isn't easy. I have to work very hard, much harder, and I know that you do too. I see people scoff, and misunderstand. I don't care. What I do care about is that you understand how hard I am working and how much I want to be as good as I can be, but I need you to take good care of us, as well as you can do that.

Don't be ashamed of me. We are alive. We are still here. I want the chance to try to show you what we are made of. I want to show you the things that are really important in life. We have been given another chance to be better, to learn what is really important. When it is finally time for our final exit I would like to look back and feel good about what we made of us and out of everything that made up our life, including this injury. I cannot do it without you. I cannot do it if you hate me for the way being injured has affected me and our life together. Please try not to be bitter in grief. That would crush me.

Please don't reject me. There is little I can do without you, without your determination to not give up. Take good care of us and of yourself. I need you very much, especially now.


Love,


your wounded brain

©1996 Stephanie St. Claire

May be reprinted for personal, not for profit use.

Gabrielli
04-13-2007, 01:02 PM
Thanks Suzanne, Sorry about that,I don't know anything about copyrights...just know it was up on the site for years and I printed it out then.

ooxx
mimi

Horsegirl
04-13-2007, 01:50 PM
Thanks, this was great to see.

wwa756
04-19-2007, 04:01 PM
Hi Gabrielli:

I am taking this moment to thank you for your lifesaving and lifegiving message to your fellow survivors. May God protect you and loved ones. Amen!!!

Gratefully,
WWA756

Pressing On
06-05-2007, 07:44 PM
Thanks Mimi,

This was awesome. I had read it before-my husband had a tramautic brain
injury from a car accident, and I've seen it. It is so important to be reminded to take care of ourselves and to not measure ourselves with guilt, and shame.
I printed this off to keep for after my surgery in my bedside table :)
Rebekah

carolad8
07-15-2007, 10:03 AM
I love seeing this letter again!
I had copied it (with proper ref.)to show my ns. he loved it too!
thanks to showing it also to my "neuro-shrink", I now have to write one of my own! uuggh!
thanks for posting it again!

Gabrielli
07-16-2007, 05:15 PM
:D
ooxx
mimi

The Sand
10-13-2007, 08:20 PM
I was doing an internet search on the side effects of "Lyrica" which landed me here on this forum. I stumbled onto this letter and was floored. I've had no contact in regard to mental "support" about my brain aneurysm surgery and had NO IDEA other people felt like that. I have had a lot of "shame and guilt" about what I can no longer be... this poem helped me with that. Help me not to just literally "beat" on myself for NOT being able to perform. I now have this printed - and will read it anytime I feel "less" than everybody else. Helping me to remember what is "good" and still working.

Thanks for sharing this...

Sandy

L107angel
04-26-2009, 04:23 PM
I found this site due to a friend, that letter is going on my bathroom mirror. Thank you for sharing!

MYANGELS
04-29-2009, 05:59 PM
MIMI THAT WAS AWESOME! HAVE NEVER HEARD IT BUT I'M NEW TO THIS BRAIN THING! MY SURGERIES WERE SEPT 26TH AND 28TH, 2007. BUT REALLY FOUND THIS BREATHTAKING
TKS LYNN MY MYANGELSR10@YAHOO.COM

carolad8
05-04-2009, 12:53 PM
Was nice to see this posted again for all of the newer people!
I carry a copy with me in my purse!
love it!! thanks!
Carol

annie122607
06-30-2009, 12:02 AM
It was nice to see this letter again I to have it on me and in my car. :):)

One night a friend of mine were laughing at some of the no brainier's we do after having our aneurysms clipped. Instead of saying I had brain surgery we now say I am a Bass. Brain Aneurysm Surgery Survivors. My daughters for my 56th birthday had a beautiful bracelet made up cut glass with the amber color for aneurysms / pearls and there were the word BASS!!!!!

HOW PROUD I AM TO BE IN THE BASS CLUB!!!!!!!!:):):)

redcyn
07-01-2009, 09:54 PM
All I can say is WOW! Our Brain is brillant
REDCYN

bambilaura
07-08-2009, 01:26 AM
my name is laura and i had a anuerysm 4 years ago.i went into a coma.i was on a ventilator.i had 5 brain surgeries to correct my birth defect.they told my 23 yr old daughter i would die.i survived because i am very healthy.i have a brain shunt.i have to learn balance all over again.i was life flighted.i take no meds.i have dogs,a macaw and a boyfriend.i was in the hospital for 5 months.i love to talk about myself

Kobridg777
11-11-2009, 10:49 PM
I have read this "brain" letter about 4 or five times in the past year and a half. It has been comforting to me. Thank you for sharing it.

GalacticGal
12-02-2009, 07:12 PM
Wow, that's powerful. I have been afraid that despite how well I'm doing, I won't be able to do what I could before. I'm a writer in the middle of a redrafted novel. I need to finish it. The writing needs to be at the same level, too. I'm a tough critic, which is partly why the thing isn't finished yet. I'm hoping when my brain exploded, it shot my Inner Critic right out of my head and onto a sliver of the watery Moon, hanging by her fingernails, so she won't bother me again any time soon. But we'll see. Been home for a few weeks and haven't written a word. Guess I'm using forums to practise my craft.

deevine
01-07-2010, 06:15 PM
I want to thank you for this letter it has given me much comfort over the last 6 monthes...the edges are very worn from being folded and unfolded so many times....Thank You!

krashleen
01-27-2010, 10:08 PM
I have had brain surgery for my chiari, and now I have an aneurysm.. I can relate to this..

I'm a little scared..