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GJZH
04-03-2007, 12:53 AM
This book is an interesting read and should be read by all Chronic Pain Patients...It had me in tears reading the first chapter....I think I suspected this but did not want to admit something he states about most doctors. Judith Hall, a researcher from Northeastern University states that the doctor is supposed to be emotionally neutral and evenhanded with everybody, and we know that is not true. Hall discovered that the sickest patients are the least liked by doctors, and that very sick people sense this disaffection. Overall, doctors tend to like healthier people more. Why is this? Many doctors have deep feelings of failure when dealing with diseases that resist even the best therapy; in such cases they become frustrated, because all their hard work seems in vain. So they stop trying. In fact, few physicians welcome patients like Anne Dodge warmly.


I certainly hope our Pain Docs do not feel like this about us...I doubt that Pain Docs feel like this or they would not go into this field. They must know that most of us are not going to get better...though some might. My pain doc told me what most docs have already ...to expect to always be in pain...I will never be pain free...I think the surgeon that did my lumbar spine already dreads seeing me...I can see it in his face ....I feel guilty when I see him...It is an awful appointment and I have to see him this month for my annual appointment...It will be one year since my surgery....I am really not much better since before the surgery...In fact, today I went shopping with my son and I was in such pain I almost cried and had to keep finding places to sit...Standing is an impossibility and walking is difficult as well....

Maybe rhizotomy will help...I have hypertrophic degeneration of the facets and hyerptrophic spurring throughout the lumbar spine...They cannot read much else...there is too much arcing...but I have sciatica type pain down the front and back of the legs...burning pain...so maybe Rhizotomy would help at this juncture...I just had two injections into the hips and that has helped tremendously...so we will see....It is awful to think though that a doctor does not want to see you or regrets taking you as a patient...I was so hopeful about this surgery and my surgeon...I really like him and would hate to think he dreads seeing me...I really do try to be upbeat with my docs...not all gloom and doom...There has only been one time that I let down my guard and cried...and I vowed to never do it again...I always wear make-up and try to look bright and cheerful whether I feel that way or not...Maybe it would be best not to go back...



http://www.nytimes.com/2007/04/01/bo...juhPOL1kE8z1Hg

First Chapter
‘How Doctors Think’
By JEROME GROOPMAN
Published: April 1, 2007

Anne Dodge had lost count of all the doctors she had seen over the past fifteen years. She guessed it was close to thirty. Now, two days after Christmas 2004, on a surprisingly mild morning, she was driving again into Boston to see yet another physician. Her primary care doctor had opposed the trip, arguing that Anne's problems were so long-standing and so well defined that this consultation would be useless. But her boyfriend had stubbornly insisted. Anne told herself the visit would mollify her boyfriend and she would be back home by midday.



David Carmack
Jerome Groopman, author of the book "How Doctors Think."

Related
'How Doctors Think,' by Jerome Groopman: Where Does It Hurt? (April 1, 2007) Anne is in her thirties, with sandy brown hair and soft blue eyes. She grew up in a small town in Massachusetts, one of four sisters. No one had had an illness like hers. Around age twenty, she found that food did not agree with her. After a meal, she would feel as if a hand were gripping her stomach and twisting it. The nausea and pain were so intense that occasionally she vomited. Her family doctor examined her and found nothing wrong. He gave her antacids. But the symptoms continued. Anne lost her appetite and had to force herself to eat; then she'd feel sick and quietly retreat to the bathroom to regurgitate. Her general practitioner suspected what was wrong, but to be sure he referred her to a psychiatrist, and the diagnosis was made: anorexia nervosa with bulimia, a disorder marked by vomiting and an aversion to food. If the condition was not corrected, she could starve to death.

Over the years, Anne had seen many internists for her primary care before settling on her current one, a woman whose practice was devoted to patients with eating disorders. Anne was also evaluated by numerous specialists: endocrinologists, orthopedists, hematologists, infectious disease doctors, and, of course, psychologists and psychiatrists. She had been treated with four different antidepressants and had undergone weekly talk therapy. Nutritionists closely monitored her daily caloric intake.

But Anne's health continued to deteriorate, and the past twelve months had been the most miserable of her life. Her red blood cell count and platelets had dropped to perilous levels. A bone marrow biopsy showed very few developing cells. The two hematologists Anne had consulted attributed the low blood counts to her nutritional deficiency. Anne also had severe osteoporosis. One endocrinologist said her bones were like those of a woman in her eighties, from a lack of vitamin D and calcium. An orthopedist diagnosed a hairline fracture of the metatarsal bone of her foot. There were also signs that her immune system was failing; she suffered a series of infections, including meningitis. She was hospitalized four times in 2004 in a mental health facility so she could try to gain weight under supervision.

To restore her system, her internist had told Anne to consume three thousand calories a day, mostly in easily digested carbohydrates like cereals and pasta. But the more Anne ate, the worse she felt. Not only was she seized by intense nausea and the urge to vomit, but recently she had severe intestinal cramps and diarrhea. Her doctor said she had developed irritable bowel syndrome, a disorder associated with psychological stress. By December, Anne's weight dropped to eighty-two pounds. Although she said she was forcing down close to three thousand calories, her internist and her psychiatrist took the steady loss of weight as a sure sign that Anne was not telling the truth.

That day Anne was seeing Dr. Myron Falchuk, a gastroenterologist. Falchuk had already gotten her medical records, and her internist had told him that Anne's irritable bowel syndrome was yet another manifestation of her deteriorating mental health. Falchuk heard in the doctor's recitation of the case the implicit message that his role was to examine Anne's abdomen, which had been poked and prodded many times by many physicians, and to reassure her that irritable bowel syndrome, while uncomfortable and annoying, should be treated as the internist had recommended, with an appropriate diet and tranquilizers.


Go to the link to read the remainder of the first chapter.....

ErinENj
04-03-2007, 02:42 AM
Thanks for posting this! I'm always on the hunt for books like this. Unfortunately, the ways doctors react to failure isn't a surprise to me. That's part of why I have CP. My original spiney refused to accept that his treatment method had failed and I didn't know better, so instead of saying, "okay this obviously didn't work the first time, so why don't we try some more specific and detailed testing to see if there's something else we should be trying to help get this pain treated." Instead, he simply said, "okay, it didn't work the first time, but it'll probably work the second. I'm not wrong on this. This surgery has to work. It does on everyone else and there's no reason it shouldn't have worked last time, unless you weren't following my instructions, and then it's your fault." And when it didn't work, he said what's probably tied for the worst thing a doc has ever said to me. "Well, Erin, your pain hasn't responded to the surgeries. There's no reason you should be in pain like that in your age, and since I don't see anything on your MRI (that's the only test he ever gave me) I can only come to one conclusion. This pain must be all in your head. Here's the name of a great psychiatrist who can help you work through your issues to get rid of your pain." I couldn't believe it. This guy had just opened me up twice, had performed two major spinal surgeries and had gotten paid very well for them, and he performs one test and says it's all in my head.

My original pain doc did something similar to me. It turns out, he has a very prescribed way of treating the different pain conditions. He tries certain medications at certain doseages and if it doesn't work, he refuses to treat you. I was getting off that list just before I went on vacation to DisneyLand a few years ago. My meds would run out while I was there, so I called his office and left him a message asking for an early refill so I could go on my vacation. After he hadn't called me back by the next day, I said, "okay, maybe he's just busy." When he hadn't called me back by the next week, that turned into "maybe he hasn't gotten the message." So I called again, and then again the next day, and the next day. When I still hadn't heard back, mom had this great idea to start sending faxes with the situation in detail and asking him to call us back, along with the daily calls. This went on for another week, until 2 days before we were to leave. I had gotten so frustrated and angry, I couldn't call anymore. Mom tried a new tactic, besides the increasingly nasty faxes, she found me an appointment (I think his office staff was getting really, really tired of my phone calls so they fit me in anywhere he had a minute). We went to the appointment, frustrated and angry, but hopeful that he'd do what I needed him to do. Well, he screamed at me for a half hour. It was the longest time I had ever spent in a room with him. He screamed at me for calling so much, for the faxes, saying that the faxes especially the last one were completely uncalled for. Then he really started to play dirty. He started calling me an addict, that I was taking my meds as I saw fit and not how he prescribed them (he actually said, and I'll never forget it," It's not Dr. Erin. I'm the doctor. I know what you need with these meds. I write the prescriptions. You can't just decide how YOU want to take these meds and then take them. I am the only one who can tell you how to take your meds." He said that because over the last 3 appointments, the last 9 months since I only saw him every 3 months, he had increased my dose of dilaudid. But he was to g.d. lazy to change the scripts. When I asked him about it and if he needed to change the script to make sure it's all kosher, he said no, that I'd have plenty as far as quantity to make sure it all worked out. And then he just forgot the next 8 times and I didn't want to push so I didn't piss him off. So I was getting screamed out because he was too lazy to write it down.) and then started saying that he should just stop prescribing my meds, cut me off, let me go through withdrawals and see how I feel then and see how quickly I come back running to him, begging him to start treating me again. But then he wrote my scripts. And when I asked him what I should do if I need to talk to him or ask him a question, he said to make an appointment. When I said, but my insurance doesn't cover you, he said, well, that's too bad because I'll never return a phone call. As we were walking out of his office, he said to me, "well, you should have just called the prescription line and the nurse who takes care of that would have helped you." I had 2 problems with that. 1- The refill line AND my pain contract both said that there were no early refills, so I figured it would take his approval to get an early refill. 2- And why would his office staff who took the damn messages not take a little initiative and say, hey, the woman who does the refills is the person who should deal with this, so I'll give these messages to her. Maybe not after the first few messages, but when I explained the urgency of the issue, I would think they'd do that. By the time my mom and I walked out of his office (mom went so that she could be an extra set of ears as to what he said about not returning our calls) we were both in tears. It take a LOT to get mom crying about stuff like that. She said that she just couldn't believe that this doctor would treat me so horribly and with such disrespect and she was upset that she had to see her daughter treated so poorly by someone who's supposed to be helping me. That was my last appointment with him.

My first two forays into this world of doctors were nightmares. So I have no trust for doctors anymore, except for my spinal surgeon and my physiatrist (the physiatrist I see for more everyday care and the surgeon I see when things get worse and I need an update on my options). I'm still scared that if a treatment doesn't work, I'm going to be treated the same way. But, my spineys have been fantastic. I was so scared to tell my spineys that the IDET hadn't worked, but they were supportive, understanding, and simply wanted to do whatever they could to help me. And my PM has been good about it and has been willing to do things he wouldn't necessarily do for the average patient. Basically, I think he trusts me and is willing to help figure out a way to help my pain. But doctors that are scared of failure aren't worth a dime. I think that doctors have to look at failure as being told, okay, this one didn't work, so lets do a little more testing or lets try something else. Most times, failure isn't the end of the road. It's just a step in the chain. Not everything is going to work for everyone, and the doctors who understand that are the ones worth our time. There's no excuse to treat patients with disrespect and hatred simply because something didn't work.

GardeniaGirl
04-03-2007, 03:23 AM
This is an interesting concept for a book, and one that makes a lot of sense to me.

Interestingly, I have never encountered this attitude in my rheumatologist, who I have been seeing since 1998.

I once asked him why he chose rheumatology.

His answer was very telling.

He said he liked it because it was challenging and there weren't clear cut answers. He liked that. He liked having to figure things out and thinking outside of the box. He liked having long-term relationships with his patients.

It didn't surprise me in the least - his answer.

He is excellent at what he does - and the reason is that the very things that would likely put many doctors off (no clear cut answers, long-term fuzzy diagnoses, etc) are the very things he enjoys most.

This is actually a fun thing to do -- ask your specialists why they chose their specialty. I have gotten some very interesting answers over the years, and the doctors are usually very surprised to be asked such a question.

GJZH
04-03-2007, 03:45 AM
Erin,

I think the difference in your care now is the level of expertise in your docs ..I think, if I remember, you are at HSS now, right? Those docs are probably more confident in their skills because they see more positive and successful cases than failures, so if one tough case fails they can accept that and work with you. I think when it is all said and done it is probably all about ego don't you think?

I think too it is like Gardenia Girl said...It is the reason they have gone into medicine...I think docs that are in it to help people and not necessarily the fame and glory...are the ones that are willing to stick with you and help you find the cause of a problem...It might just take a little bit of work too...

I just saw a RA doc like that...maybe RA docs are more caring..They are a quirky bunch..You either get a good one or an odd one.....He saw me for the first time last week...He took two and half hours with me ...I thought they were kidding when they said plan on being here for at least two hours...I thought right...he will be in and out ...He was with me the entire time and examined me from head to toe...He is the first doctor to acknowledge that my hips are painful and inject both of them at one time...{I have a pain doc too...and have been going to him for three years now}...He is runing my blood tests again and taking nothing for granted...He is young so maybe that is why he is so caring...

Mark N
04-03-2007, 04:01 AM
It is really sad that there are doctors out there that don'tlike the difficult to treat patient but like anything else in life it takes all kinds. My OSS is the doctor in his group that takes on the hard to treat conditions. I was with an NS in the group and he couldn't find the right treatment for me and referred me to my current OSS. It was a blessing to get this guy and he isn't afraid of the tough cases to solve.