Please talk to me, I am hurting SO bad!

[A.K.]

I just need someone to talk to right now. My pain levels are ridiculous and I have taken everything I can for the moment. Anyone got anything good going on tonight?

[Mark N]

AK the good I have going on right now is I have been sleeping even if it is at 1.5 hours at a time. I have been having a good visit with my mother and it has been nice to be able to talk to someone about my problems with my wife. It really helps just to have a sympathetic ear especially when it is your mother who believes in you. I will pick my son up tomorrow from his visit in Indy and it is always great to have him around.

When i get in so much pain I use ice. I save it for the worst pains as it numbs the area and gives me a short break from the pain. I hope you can get your pain down soon. Talk to me as I will hang around for a bit.

[Mark N]

AK, I hope you are getting your pain under control. I am falling asleep at the keyboard so I can't stick around any longer right now. Take care and I hope you are feeling better soon.

[A.K.]

Thank you and sorry I didn't respond. I was having a bit of a break down.

[A.K.]

I did not realize that when I posted for someone to talk I was so on the verge of sobs. This is happening again too often. I need to call my psychologist and make an appt.

[A.K.]

Mark I am very happy for you that your mother is supportive of you. I am sorry that you wife is not.

My husband has been a rock for me through all of this. When I started crying I went to the bedroom and he woke up and talked to me, held me and tried to get me in bed to sleep. The problem is that my legs are on fire from the neuropathy and laying down is my worst position so that is out for the time being.

1.5 at a time is a God send man...I know you are loving that. I say you just hang in there and go for two hours straight on your next doze tonight!

I really hope your time with our son will be super meaningful tomorrow. How old is he?

[krashleen]

A.K. I hope you are sleeping by now.

Rest well tonight and check in tomorrow. I know the feeling. Its brave of you to check in here when you feel this bad...when I feel that bad I cannot even think of turning the 'puter on.

take care!

[Mark N]

AK, I hope you are doing better by now and maybe getting some sleep. My son is 15 and very mature for his age. Thankfully him and his older sister are supportive to me. I wish my wife were a rock for me but instead I am criticized over and over although she does have some good spells but even then doesn't do much to help me.

When these spells hit, try to calm yourself. I think of something good in my past whether it is a place, event, or even food. I have even had my wife get up to sit with me when I was having a reaction to my meds. Like I said, she has her good spells.

See your doctor that prescribes your meds and increase your base pain med or see if you can get a B/T med to deal with these breakthrough [B/T] pain spells. I have had these terrible pain spells so I know what your pain is like.

Let us know how you are doing.

[BrokenBladder]

A.K. I hope this morning brings you feeling better. I'm sorry I wasn't here last night.
I do agree with Mark about the B/t med. It sounds like you may need something a little stronger for th bigger attacks.
Also there is nothing wrong with crying your eyes out. I have done it many a time over the pain that comes over me.
I hope you feel better today!!:)

[A.K.]

Thanks friends. I was up until around 6 a.m. and had already woken back up by 8:30. I thought with all meds I would sleep a while but the pain got through.

I appreciate your suggestions however I do have a b/t med and have been taking it. I take Morphine Sulfate Er 30mg 3 x a day + Topamax 50 mg 3 x a day +Cymbalta 3 x a day + Xanax 1 x a day (if I am anxious like last night). Then for b/t I have Oxycodone/APAP 7.5-325 mg 1 or 2 a day and I have been taking 2 at a time twice a day for the past two days which I never do but I have felt I really needed. (This is not charactaristic for me at all - I always stick strictly to my prescription. My pain has just gotten the better judgment side of me lately, I admit.)

Doesn't this sound like enough??

[Mark N]

Kira, it sounds like enough but you could bump up your Morphine Sulfate to
40mg [I have been at 60mg for years and don't use a BT] and be able to back off the BT so your overall intake is about the same. It just sounds to me that your baseline med isn't high enough and you are using the BT to make up the difference. It is your call along with your doctor's call.

[curiousforever]

Hope you're feeling better....

[Kathi49]

AK,

I hope you are feeling better too! That neuropathy is a bear. I have it in my feet and at times it is everything I can do to get it calmed down. And I know you probably have tried everything; I don't think I can add much more. But I just wanted to say I hope you are better.

[shotspine]

I'm so sorry to hear how bad your burning pain is. I also get that in both thighs, on front and outside but I guess I'm luckier than most.......mine is mostly positional, so changing positions usually helps. Laying down is the worst for me also. I also use Lidoderm Patches and lots of topical analgesic/anti-inflammatories. The patches have been a godsend for me. I use them at night so I can get some sleep.

If you haven't used the patches yet, you might ask your Dr. for some samples to try. They work best after 3 days, in a row, of use.

[A.K.]

Thanks Shotspine, oh yes...I couldn't make it without my Lidoderm patches. Problem is they aren't big enough to cover all my main areas of pain, which are from mid-back solid down to my knees with worst being low back, hips & outer thighs. I use three or four at a time on combo low back & thighs. They are all that keeps me the least bit sane.

Keep those ideas coming, you all are awesome!!!!

[twotoejoe]

AK, I hope you have a better night tonite. My neuropathy has been giving me a lot of additional pain in the past couple of weeks. My doc changed me from Lyrica to Keppra last month, and I don't know if that is my problem or maybe it is the weather were are having here in GA. What part of the state are u from? I live in the Northeast mountains.

[suede]

((((A.K.)))))
I'm so sorry I missed this.
Just know I'll be thinking of you and hoping that you will be able to get the pain under control; and keep it there.
Lots of gentle hugs and many good thoughts.
Linda

[twotoejoe]

The pain in my right foot has been worse today than in years! Hope your day is better, AK

[A.K.]

I really appreciate everyone's concern and I am very sorry to hear about the extreme foot pain you were experiencing yesterday Joe. Is it any better today? I pray so!

I am in an official "tough patch" with a pain cycle that is just not giving me many breaks. Saturday night was the breakdown night I noted and I have taken every medication I have prescribed to me since then at every single appointed time. This has helped me sleep more, for which I am thankful but I have zero energy and all I accomplished yesterday was a shower and today I didn't even get that done.

My sweet husband came home from work and said, "did you stay in bed all day darling?" and I said well pretty much....I got the mail but the delivery lady brought it to the door because we had a package so I didn't have to walk to the end of the driveway or it would still be in the box. He never, ever complains though. I pray he doesn't just up and leave me one day because he can't take it any more. I could still make it because I would still have God but I have to admit it sure would be hard to cope with an empty house.

Okay....gotta go back and lay down....just wanted to check in. I see the doctor Friday morning and we will talk about medicine changes and what in the world he can do for me. Keep me in your thoughts, you are in mine. Gentle Hugs, A.K.

[Mark N]

AK, I know where you are at right now. There are days that I don't get anything done not even a shower. It seem slike nothing touches the pain unless it knocks me out but fortunately it passes and I do better. I know what you mean about your husband. My wife complains a lot about me and threatens to leave but she has been better the past week and I hope it stays that way. Like you, I would make it if she leaves some day but I hope she doesn't and if she would get the counseling she needs she would be much better. But right now she thinks there is nothing wrong with her and her attitude even though both of our kids side with me and have stood up to her about critizing me and telling her she is wrong about her perception of me.

I hope you can get some sleep and that this cycle of pain will subside soon. As long as your husband isn't complaining I would think there isn't much chance he will leave. Take care of yourself and do what you need to feel better.