Food Sensitivities?

[squeakysmum]

Hi guys -

I was wondering if any of you leakers experience a worsening of symptoms when you eat certain foods?

My husband has just undergone more scans, more tests, still no leak diagnosis after four years. Even though his symptoms are spot on for a leak, I am beginning - just maybe - to accept the possibility that it may be something else.

Are there any illnesses that you know of that have the *exact* symptoms of a sudden-onset CSF leak?

When my husband eats strawberries, for instance, he has an immediate reaction that makes him physically reel and it causes excruciating pain (on top of the already-excruciating pain he's in all the time). Seems odd, so maybe there's something to the thought that it's not a leak?

-Christina

[guineapig]

hey mum,

ahhh, many leaks are cryptic or "occult" in medical lingo. so no showing up in neuroimaging or most doctors intelligence perception. csf leaks are allowed to be clinically diagnosed (i asked God and He told me so. my neurosurgeon thought i was praying/talking to him (i told him i understood), but i wasn't.:D) below quote of other causes of intracranial hypotension. strawberries... the sudden reaction sounds like an allergy. look into anaphylaxis or anaphylactic shock; below, a cause of ich "severe systemic illness" could very well be interpreted as said condition. the question is, just what symptoms if it is anaphylaxis. you might query the right doctor (if there is such a person) if anaphylaxis can cause these symptoms. keeping in mind, most medical personel do not believe in humans suffering from more than one problem at a time. in fact, many a leaking person is dismissed as crazy (a medical term largely reflecting the diagnoser when it comes to leakers) for all the symptoms.


"Medical causes of ICH include dehydration, diabetic coma, hyperpnea, uremia, and severe systemic illness.[7] Loss of CSF caused by the formation of a thoracomeningeal fistula is a rare complication of thoracic surgery."

http://www.medscape.com/viewarticle/467001_print
Intracranial Hypotension Syndrome: A Comprehensive Review
Michael Paldino, M.D.; Alon Y. Mogilner, M.D., Ph.D.; Michael S. Tenner, M.D.
Neurosurg Focus 15(6), 2003

bottoms up!
guineapig

[Concerned Gal]

Just wanted to say, I haven't noticed any particular sensitivities to food. I'm a creature of routine (basically eat the same things all the time) and i've tried to work out what causes my bad days and haven't been able to pin it on food.

Good Luck!