Maybe a cause of Dystonia ?

[ainee]

Have those who suffer with any form of Dystonia, ever had Opisthotonus/Opisthotonos? This is arching of the back and can happen soon after birth, with many babies displaying CP - or later in life as it happened to me 2 years after a head and spinal injury.
I believe from my research, this condition may be the cause of many unknown neurological conditions. An Osteopath in 2001, said that my back muscles were all knotted up. These knotted up back muscles have never been found in any of the many tests I've had - even on MRI's with dye. So I believe this may be the cause as to why many causes of illnesses and conditions are never discovered.
I've posted info of this on BT - General Neurology and Rare Disorders in a thread - A SYMPTOM of Many Illnesses and Conditions - started by ainee. It's a couple of pages back.
ainee.

[fireweed]

Dystonia is a symptom, like seizures. As is opisthotonus.

You may want to read this -
Opisthotonus (http://www.aacpdm.org/index?service=page/opisthotonus)

I personally think it may not always be spasticity but at least part dystonia - but that is just my belief as a mother because of my experiences with opisthotonus and my child, who experiences significant dystonia. (opisthotonus is described more as a position than a particular cause in the brain - over time, as Medicine recognizes the roll that dystonia can play, it feels to me like some terminology is being clarified/has new meaning, etc.)

Dystonia has more causes than I can count. I can't speak to the particular cause that you think you may have identified for yourself. Doctors don't know all the causes. But dystonia is most definitely caused by several known genes, some medications, several metabolic disorders, and those experiencing brain injuries.

I'm glad you've found relief.

fireweed

p.s. we've posted in the past a list of causes of dystonia. if you want to see it, you might google dystonic disorders, and see if you can find it.

[ainee]

fireweed, thanks for the info. I've read similar about Opisthotonus.
I didn't go to the doctor after my back arching, which lasted several minutes in bed one night. I couldn't move for a long time - had numb arms and pins and needles. My body stiffened out plus the above symptoms several other nights when I was in bed.
The doctors probable don't see many cases, and young children, as well as adults, may suffer without anyone being aware of it. I was an adult - but didn't know anything about medical terminology - I didn't tell the doctor - and when I displayed the horrific symptoms - he didn't ask.
After I found the sheep back arching - "stargazing" info, my research came across Opisthotonus info. - 4 years after I'd suffered it and it was another year before I found a diagram of a person suffering it. I've found it on the internet over a year ago - and it feels as dreadfull as it looks.

I first noticed my "stargazing" and head swinging to the right in 2000.
In April 2001, our sheep had a neurological illness - one of their symptoms was "stargazing". I bought their treatment in tablet form - also for human use - which suppressed the "stargazing" and head swinging to the right. A smaller or frail person would only need half my dose.
The simple treatment also suppressed my horrific symptoms and after many months of experimentation, my symptoms started to reverse. I experimented with the treatment - found the right dose rate and dose quantity for my weight.
While I still have the "stargazing" and head swinging to the right, both are suppressed by the treatment for awhile - I now take a smaller dose as I don't suffer pain. Maybe I need to take the larger dose I found successful back in 2001 - but then it doesn't worry me all that much now. I'm more concerned about the doctor's disbelief of what I've told him - and others - well, he didn't believe my sheep disease symptoms - I looked fit and healthy - but he didn't see my symptoms and certainly didn't feel my horrific pain.
I believe the head and spinal injury I suffered years before, triggered off the Opisthotonus, then 2 years later, the huge vibration in my spine. This seemed to cause the damage and knotted up my back muscles. As I increased my treatment dose, I felt a slight twitching in my spine. Over time, I realised that with each twitch in my spine, my symptoms started to reverse.
I hope one day, this information will help others to have better health.
ainee.

[Abby2006]

Since I was just dx'd with cervical dystonia, I was told a pesty MS lesion went deep into the BASAL GANGLIA and tripped a few wries (my own words

Abby