Has anyone heard of HaNDL syndrome?

[Julie@411]

Has anyone heard of this sydrome called HaNDL sydrome? I think this is what I suffer from.

Julie

[AJack]

What does HaNDL stand for? Sorry there are so many acronyms out there, I lose track.
best wishes, AJ

[Julie@411]

Volume 42 Issue 10 Page 1038 - November 2002

To cite this article: Cory C. Toth MD (2002)
Persistent Cerebrospinal Fluid Abnormalities in the Syndrome of Headache, Neurological Deficit, and Cerebrospinal Fluid Lymphocytosis Despite Resolution of Clinical Symptomatology
Headache: The Journal of Head and Face Pain 42 (10), 1038–1043.
doi:10.1046/j.1526-4610.2002.02235.x

Authors
F. Chalaupka Devetag
Abstract

A 30-year-old man without previous attacks of migraine, despite a family history of migraine, presented with moderate headache and temporary focal neurological signs and symptoms. The patient had had, two weeks previously, a prodromic flu-like illness. Cerebrospinal fluid (CSF) analysis showed lymphocytic pleocytosis and increased total protein. Extensive microbiological determinations were negative. Routine hematological, immunological, blood and urine tests were normal. Electroencephalography showed a focal slowing in the right temporal area. Brain SPECT, performed during a symptom-free period, revealed decreased tracer uptake in the left temporal and insula cortices,topographicallyconsistent with abnormalities on brainstem auditory evoked potentials. Computed tomography and magnetic resonance imaging of the brain were normal. A cardiovascular examination provided normal results. The patient completely recovered within 2 days. This condition is suggestive of "headache with neurologic deficits and CSF lymphocytosis" (HaNDL syndrome). I hypothesize that this syndrome could be produced by the direct action of a virus.

This is a idea of what HaNDL Sydrome is. But when I get sick with migraines and meningitis, it lasts for monthes with hospitalization.

Julie

[dcdear]

I had Handl Last year according to my visit to mayo. If someone thinks they have this I can tell you what my experience was. It was wild

[burdy307]

I was diagnosed with HaNDL syndrome 6 years ago when I was only 15 years old. It was the most painful and scariest experience of my life.