Bicornuate/septated uterus--anyone else? Chiari links enclosed.

[Mayzoo]

I just found out I may have a bicornuate/septaed uterus (see below for definition). I found this info out by reading an old sono report from 07-00 when I miscarried my first child. I was of course never told.

Torticollis can be caused by bicornuate uterus: "PRESENT AT BIRTH (Congenital):
...Uterine abnormalities of the mother that restrict the growing fetus, such as: Partially of fully divided uterus (septate uterus). Banana shaped (unicornuate uterus). Heart shaped (bicornuate uterus). Double uterus and possible double cervix and/or vagina (uterus didelphys). Presence of fibroid tumors in the uterus" (www.infant-torticollis.org/causes.htm)

The relevence to this site is the other conditions possible for the baby assosiated with this uterus condition:

"NEUROLOGICAL:
Cervical spinal cord lesions
Spinal cord tumors
Presence of cavities in the medulla oblongata (Syringobulbia)
Colloid cyst of the IIIrd ventricle
Peripheral nerve lesions
Tumor of the XIth cranial (spinal accessory) nerve
Posterior fossa tumors
Wilson's Disease
Dystonia musculorum deformans (a rare, chronic, hereditary disease marked by involuntary irregular, clonic contortions of the muscles of the trunk and extremities. Also called Ziehen-Oppenheim disease, dystonia deformans progressiva, dysbasia lordotica progressiva, and torsion dystonia or neurosis.)
Branchial plexus damage
Central nervous system lesions
Arnold-Chiari malformation and syringomyelia (related to scoliosis)
Herniated cervical disk
Abnormal cavities filled with liquid in the substance of the spinal cord (syringomyelia) (www.infant-torticollis.or...auses.htm)

So, I guess I am curious if anyone else knows that they have this condition......still working on wrapping my mind the scientific hows of these conditions.

My daughter has ACM I, Arachnoid Cyst, Syrinx, and torticollis amoung others.

Sorry for the bizzare spacing---cut and paste will do that.

Mayzoo

[GinaMarie]

HI Mayzoo.
I also have a bicornuate uterus.. I found out when I was pregnant with my first child (which I did end up miscarrying).. When I got pregnant with my next child I changed doctors to a high risk doctor and hospital and was watched carefully. I start contractions in my 4th month. With my next child I was put on total bed rest only to get up to go to the bathroom or hospital. I had a home monitor to monitor contractions. I was put on medications to keep the contractions down. He was born at 35 weeks weighing almost 7 lbs. He is healthy except for his ADHD.

My second and third sons were both born at 39 weeks with planned C-sections. I wasnt put on bedrest with them because my 2nd son started a new trend with my boys of going UNDER the wall between the two "horns" of the uterus and cradling both halves. So they laid sideways with thier head and feet both into my ribs on each side.

My 4th son was born at 37 weeks because of prayer.. lol I was soooooo miserable and in pain from carrying him. He was 3 weeks early but weighed 9 lbs 9 oz. He was SMALLER than we thought he was going to be. We THOUGHT he was going to be 11 lbs at 37 weeks. :eek: .

Now my two youngest sons both have my rare disease.. They both also last yr were diagnosed with Chiari Malformation. Noah just barely has it but Adam does have it. Not sure if its because of the uterus or not. I didnt know of those symptoms or I would have asked thier neurosurgeon when they saw him last Thursday.

They do say that it is challenging to carry a baby with a bicornuate uterus or any of those conditions because the baby doesnt have the space it needs to grow. Was your daughter premature?

I hope you do have a good high risk OB/GYN. Msg me if you want to talk more. I had a hysterectomy a couple yrs ago. My doctor said I did have fibroma's in there also but with my rare disease I am high risk for all cancers, tumors, fibromas etc.

HUGS
Gina Marie

[joynow]

I have an 11 mm Chiari malformation and a slightly bicornuate uterus. I say slightly because it isn't deeply divided. It looks like a heart which is sort of cute. My child was 3 weeks early but fine.

My nephews wife has a T shaped uterus and there was a lot of concern. She gave birth to her first child at near full term and is mid-term into a pregancy with twins now. It can work out.

I know a miscarriage is heartbreaking and wish you all the best in the future.

[razzle51]

I wouldnt think this has anything to do with Chiari .

[Mayzoo]

This type of uterus both cramps the baby, and can prevent the baby from turning in proper birthing position. That is what happened with my daughter. She did not turn into proper position. Her medical conditions in the sigi are all attributable to malpositioning which lead to severe birth trauma. Her frontal skull plates where repeatedly forced into her brain for 2.5 hours. I was in the push stage for that 2.5 hours, while she was stuck on my pelvic bone. All her capillaries in her forehead were burst at delivery. This caused the cerebellar tonsils to distend, an Arachnoid cyst to be produced. Her torticollis is left slant along with everything else that has a side pronouncement. Her right frontal skull plate was pushed into her brain more pronouncedly than her left.

All of her conditions state that they may be caused by trauma----and 2.5 hours of having a hard object jammed into your brain is trauma. Additionally, she had to be delivered by forceps after 36 hours of labor, and the 2.5 hours pushing because she was in constant distress and dying. She was born not breathing, due to the trauma. She did not breath independently for 15 minutes.

Mayzoo

[razzle51]

wow had no idea .