Is this thread used at all????

[lmb3]

:o My DS was just dx and it would be nice to talk to someone.

[Vie en Rose 1]

:) Hi Lisa,
I'm an adult who has CAPD.

Here are a couple of links to CAPD groups that are a bit more active:
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For parents/educators... of children with CAPD (also called APD):
http://groups.yahoo.com/group/AuditoryProcessing/

For adults with CAPD:
http://health.groups.yahoo.com/group/OldAPDs/
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Good overview:
http://www.kidshealth.org/parent/medical/ears/central_auditory.html

National Coalition on Auditory Processing Disorders:
http://www.ncapd.org/php/index.php

Website with many CAPD resources - from a visual-spatial learning perspective (which your son may or may not have):
http://apd.apduk.org/

[lmb3]

Thank you!!

[Keggy]

My 17 year old dd has a CAP disorder, if you want to talk send me an email or pm, this forum is sort of .........zzzzzzzzzzzz


:o My DS was just dx and it would be nice to talk to someone.

[mm9221]

Hi All,

I've been looking for some information, but I don't know if I'm on the right track or not. My son is six and just finishing kindergarten. He had chronic ear infections when he was little and ended up getting early supports and services in speech until he was three. He transitioned into a developmental preschool. They did note sensory issues and he had a sensory profile done before he went to kindergarten.

He did his three-year re-evalation in February and was discharged from sped services. I was fine with it at the time, but had I known that he was having trouble in the classroom with phoneme segmentation and issues around speech, I would never have agreed to his discharge. His teacher had no idea he was being discharged either.

Anyhow, they did put him on a 504 after a letter fom his doc for OT services to deal with his sensory issues. In the classroom, he is very loud! VERY!!! When they do OT stuff for everyone in the class, he hangs back and doesn't join in. When they aren't doing it, he is jumping around in place and hyper.

I've noticed at home that he is better when we do things one-on-one with him. He's still hyper and loud at times though. He is a bright little fellow despite the fact that he is testing low-normal to just below normal in his reading...that was from his IEP testing. The two don't match up.

When he reads, he has his sight words down pat!!! Sometimes he can read regular words okay, but other times will take the first couple of letters and make a guess a word that relates to the context of what he is reading, but often not. Today he read the words noodle soup from a package, but other times he struggles with putting the sounds together to do bigger words...even in books at his reading level.

I read him the Velveteen Rabbit a couple of weeks ago which took over a half hour. He got up about three times, but came back to sit down. He could answer some questions about the story and seemed to really enjoy it. Other times, it's a struggle to get him to sit down long enough to do anything.

I know his hearing is normal because I had it tested recently. He does have tubes in his ears...the longer-lasting kind. Math is a strength for him. I just don't know what to think. I met with his 504 Case Manager and his kindy teacher. They agreed that he seems to meet many of the characteristics of kids with APD disorders. I theorized to them that perhaps he is so loud because he can't hear himself think. The problem is, the louder he gets, the louder the other children get.

I know this could be due to his age, but the inconsistencies are driving me nuts. He can speed through reading certain things, but gives up or says he is too tired when he encounters anything new or something he has to sound out. It's almost as though he feels stupid or something. His reading program at school is largely phonics-based. I know he likes stories, but he struggles in a group. His Dibels testing finally came up from below standard at the end of the year, BUT as his teacher says, they did lots of practicing for that to happen.

Does this sound ANYTHING at all like APD? Writing is laboriously slow for him. He can have trouble focusing in a noisy environment. Does ST help with APD? I know that if I have a diagnosis that shows a need for ST, then I can keep him going for next year. I worry about first grade. I know he's smart, but he it doesn't seem to show in his testing. I don't believe he is dyslexic either.

Help!!!!!

Thanks,
Elaine

[marijo]

I'm sorry but I have only skimmed through them as its very late, and I should be trying to go to sleep.
I firmly believe that all children benefit from a quiet and calm learning environment without a doubt. However there is a particulat group of children for whom a quite environment is a must. Their auditory pathways become completely overloaded in a noisy envoronment, and not only do they find it impossible to learn, but also might develop behavioural disorders as a result of this. I think it is very sad that in the UK anyway, they seem to try and make all education inclusive, and all children shall have the same experience regarding access to education, and completely disregarding their own individual needs. I think you sound like a parent who is totally on the ball. Ultimately the best possible support will come from you, the parent, because you know your own child better than anyone else, and that is fairly obvious from your post. I always believed my son was very bright. However he wasn't good or quick with words. The children's dad, (my husband) worked away. When he came home my son would try so very hard to engage him either wittily, or otherwise, but he never could. He was just that little bit slow off the mark, and his older sister, and younger brother and sister were just quicker off the mark. BUT I always knew he was very bright, and also a lateral thinker. To cut a long story short, he is 27 now. He owns his own very beautiful house. He has a stunning girlfriend and small daughter. (I get double grandmother bits because his girlfriend's mother disappeared years ago.) He is at the end of 2nd year university doing building surveying, and he is also working as a building surveyor. But the best thing is, he has such a quick sense of humour he has us all in stitches whenever he is around. I know I have gone off track a bit there, but as my professional life was spent working with children who had special needs of all kinds, I just thought my story might encourage you. I did some tests on my son, and proved that he was not dyslexic, but he had cross lateral confusion, which can set you back a bit. Believe you me, it is not a gift to be ampidextrous, which my son was, but also his dominant side never did come to the fore.
Good luck anyway.
M.x