Just wondering

[Texan123]

I have been going through some off and on symptoms for the past 5 years. I have had burning sensations on my skin, achiness all over and just an uneasy feeling. It comes and goes and is always the same when it comes back.

I have seen neuros, one MS specialist... I have had MRIs w/ and w/o contrast and they are all clear. The drs. think it's depression/stress/anxiety which I know can be a catch-all.

I am just wondering - do any of you have the same exact symptoms every time you have a flair? I mean - I will feel fine for months and months then the burning comes back, tender skin pain, and achiness. It's always the same. No numbness or dizziness.

I have felt fine for about 6 mts and now am feeling bad again.

Does this sound like MS or something else?

Thanks for your opinions.

[stillstANNding]

Hey there, Texan,

Yes, burning skin often right on the brink between burning and icy cold is a paresthesia I've had. Over 35 years, not always in the same place. New ones come and old ones stay or drop out.

Tender, pale skin w achiness - no, not for me.

This could be many things, Tex. Isn't screaming MS to me. Whatever it is, I hope you get some relief from it.

Regards,
ANN

[bluesky63]

Hi there. :-) I tried to write an articulate reply giving you useful info, but it's not coming out right. So basically I will just say that no, my symptoms vary and affect different areas.

I hope you're getting a good workup for the different things that could cause your symptoms. It's frustrating to get to the bottom of it when there are so many possible causes for similar symptoms. I hope you get answers and relief soon. :-)

[Texan123]

Thanks for your replies. I am not sure what to think of this. The only thing I can figure is that it could be fibromyalgia as it seems to hit me usually after a very stressful time.

I ache and hurt all over today. My skin hurts all over and I feel very off.

Is achy, raw feeling skin an MS symptom?

This is very confusing.

thanks.

Gina

[Mariel]

Skin problems afflict a large number of people with porphyria. This can include burning skin. I have been having it lately, working hard to find creams that help, because mine's made much worse by the dry climate of New Mexico--you live in Texas, dry too? Even though nerve endings cause some of the burning, the exterior skin, the dryness, can make it worse.

Achyness all over--that's porphyria too, although not necessarily at all times of your life--it can be intermittent or chronic.

But in my lifetime I've also had the dizzyness and imbalance. I posted elsewhere under Coconut Oil--Failed--how I got the dizzyness and imbalance back because I went off the Swank diet, which is aimed at M.S. But I also got dizzy last summer because I had a dental anesthetic improper for porphyria--in fact, I got vertigo which persisted four months, and peripheral neuropathy in my feet.

Anyone who is thinking about fibro as a dx should consider porphyria. It's very hard to get a diagnosis, though, due to lots of reasons--docs lacking knowledge, tests being performed wrong or not at the time one is in attack, etc. But read about it.

Mariel