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View Full Version : Hydrocephalus (in memory of Braindrain aka Gina)


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  1. hydrocephalus
  2. Raffi
  3. Surgery #21 completed!!
  4. Hydro Conference
  5. Anxiety (Not sure if this has already been discussed elsewhere...)
  6. CSF leak & hydrocephalus?
  7. Headaches At Night
  8. A legally driving daughter, an awesome conference...
  9. Congestion/coughing before shunt failure?
  10. shunt infection-help
  11. "We" have decided.....
  12. Proximal shunt catheter obstruction
  13. quiet moans
  14. Fireworks?
  15. VP Shunt question
  16. "You don't have good depth perception, either..."
  17. Raffi's MRI
  18. O/T but an update on my hand
  19. Some goings on here...Some OT
  20. Roll call, everyone...check in
  21. Some shunt (?) weirdness goin' on last night...
  22. VP Shunts and clothing
  23. Marilou
  24. Raffi's MRI
  25. sigh....VP shunt failure
  26. mom had a seizure
  27. Keep Raffi in your thoughts!!
  28. Raffi's new Valve
  29. upside down rollercoasters...
  30. Megan's MRI
  31. Marilou has a ? (re Raffi)
  32. Noticing some issues w/ hearing...not serious, but checking in....
  33. Skippin' town for a week...:)
  34. Raffi's Home
  35. Hoping for the best...
  36. Overdraining symptoms?
  37. Adhesions?
  38. New Here lots of questions
  39. Drs Info
  40. Raffi
  41. Yawning?
  42. Hayley's MRI
  43. Does anyone have an anti-syphon device
  44. Has anyone has a LP Shunt? or multiple shunts?
  45. MN Trip
  46. Called the NS
  47. Surgery Monday
  48. The good, the bad.......and the ugly!
  49. I'm baaack!!!!!!!! :)
  50. Turning hydrocephalus on its head
  51. O/T-ish: Truly kewl news about my "healthy" kid :)
  52. Visit to Adult Hydrocephalus Center
  53. My amazing young man is 14 today :) (Yeah...a cross post :) )
  54. My Huge Scary surger is Monday the 28th of July.
  55. The date is set!
  56. Becca Turns Seven!
  57. Emily will have a 504 plan in place for school
  58. MN results
  59. shunt headaches
  60. I am SOOOO MAD! - OT
  61. **kathleenandjoe** - regarding no trampolines
  62. Extra Prayers for Connie today
  63. Becca's MRI Machine
  64. sensitive to adjustment
  65. My mom's surgery
  66. Ah, the joys of life along the Gulf Coast
  67. Jus' a bit O/T: My hubby's sleep apnea dx--at LAST!
  68. A cool book for kids! :)
  69. Does anybody get pressure headaches while flying?
  70. Put in your favorites
  71. Dr.House Episode
  72. 2 year shuntaversary!
  73. Raffi's NS
  74. Toy MRI Pictures!
  75. tickle cough & exhaustion & Hydro
  76. goodby for awhile
  77. O/T - need book recommendations
  78. Leaving also-but,will hopefully be back week after next.
  79. how low can we go....
  80. Around this time 2 years ago.....
  81. Computers - Grrr!
  82. Help
  83. Anyone know Kim Andersen? Sad news...:(
  84. Happy b-day to me, happy b-day to me...
  85. A heart-stopping discovery on a tough day
  86. Omg...menopause??!! Help!!!!!!!!!!!!!!!
  87. All opinions welcome
  88. Alize update
  89. ??? - this might be one of those "DUH" moments, but....
  90. Alizesmom
  91. when hydro is no longer #1 in our lives....
  92. confused about visit to Neuropsych
  93. To those of you with Hydro
  94. Okay...I'm about to climb a flippin WALL!!
  95. O/T Dad going home any day
  96. Head rushes (need advise)
  97. non-programmable shunt
  98. Today is Gina's first b-day in heaven...
  99. **Canada hydro peeps**
  100. OT-Intercranial Carotid Artery Dissection
  101. Tortocollis (sp)
  102. O/T: My "Rain Man" during what was left of Hanna
  103. O/T-ish: Caren's friend dx'ed with Chiari
  104. Kynzer, Dagaz and Deborah???
  105. We're still around
  106. Hello all!
  107. Need a bit of advise please..
  108. Hard decision
  109. CSF leaking
  110. BP and Hydo
  111. Blech...lousy brain day :(
  112. Caren's friend is better and back at school :)
  113. Here we go again, this time for real....
  114. Hello from Lemontree
  115. Raffi and Scar Healing
  116. Question for all you neuro function gurus...
  117. Very OT - Bad Day Today
  118. I have barely posted lately..so here is small update.
  119. Just a quick question??
  120. Leavin' on a jet plane :)
  121. here we go again
  122. Hi, new to this category..., old hat in the Trigeminal Neuralgia category
  123. feeling paranoid
  124. Post-Ike update...
  125. WOW...my head pounds just thinking about this!!
  126. Waiting & waiting & WAITING!!!
  127. One sided headache - possible hydro problems?
  128. shunt malfunction, hydrocephalus, what next ?
  129. Had a good talk with Gina's mom today
  130. Emotional Lability!!
  131. O/T, but...EXCITING NEWS!!!!!!!!!!!!!!!!
  132. Hi I'm New, But I was originally born with hydrocephalus
  133. FINALLY had new MRI done
  134. So, you're not dead...
  135. My sweet young man comforted me today...
  136. O/T: Dar and Jordan can appreciate this...
  137. slit vent syndrome/ subtemporal decompression
  138. Have any of you ever thought your pump wasn't working
  139. Update:
  140. Raffi may get the orbis sigma valve ( ?)
  141. Bob Fowler, the face of NPH
  142. I'll be "away" for a while
  143. Next week-i don't know when I will pop in here.
  144. Could this be happening NOW.....
  145. return of an Old face...
  146. mad Hatter'70 is my myspace display name
  147. Qestion for anyone that can answer it.
  148. Marilou
  149. Should I be alarmed?
  150. This is the cold that never ends...
  151. Hydrocephalus and Basal Artery Migraines and vasso Depressor
  152. D**MN Insurance Companies! Little OT
  153. An early b-day present to me, from me :)
  154. medication for attention issues?
  155. Legal Action
  156. I'm back......temporarily
  157. Locked out and lonely!
  158. Learning issues/Suggestions for studying?
  159. New Here... and I have a question
  160. Abdominal Pain and Shunt Tube Shortening
  161. Question ~Eye Pain~
  162. WHEW!! Everything is OK!
  163. Interview tomorrow...:)
  164. OT-A Beautiful Rock Ballad
  165. I can't remember the last time I was this nervous!!!
  166. All Done!!!!!!!!!!
  167. The other important thing today...:(
  168. OK...this is probably an off the wall ?, but I have to ask....
  169. My Life has been like a Puzzle I couldn't work
  170. neurosurgeons in the Boston Ma. area
  171. Facial Expressions
  172. Something may be up, but hopefully not....
  173. It ain't just rain...wind can do it, too :(
  174. Hydro and education resources please
  175. Liz,Nat,anyone who is willing to offer help??
  176. It's been over a year now...
  177. Finally a Referral to a NSG
  178. The day is soon approaching...
  179. 21 pees today for Raffi???
  180. Update on Hannah
  181. Question
  182. Terrible, sad news!
  183. ?? about shunt placement/revision
  184. I have been trying to say "middle-aged" for...
  185. Happy 9th Birthday Raffi!
  186. On gma this morning
  187. need some advice
  188. O/T: Awful time...just gotta unload :(
  189. Darcy's funeral....
  190. Looking for input........
  191. Update on Raffi
  192. Probably won't be on after Thursday..prayers needeed
  193. And it keeps on coming...
  194. DR Appt.
  195. Tomorrow is my big day
  196. shunt flow study.......graphs???
  197. Skull thickening anyone have any info?
  198. MY BABY---Help
  199. Epilepsy Awareness Month
  200. test results
  201. info on non programmable
  202. Indigestion/VP shunts
  203. Thoughts and prayers for Raffi today please.
  204. Insurance rigmarole!
  205. Mri Films
  206. symptoms of overdraining
  207. New Dr in town
  208. Toddlers Incredible Surgery
  209. over draining and poor memory
  210. Not sure what to make of this
  211. surgery tomorrow
  212. Another Brain Surgery Webcast - FYI
  213. possible seizure?
  214. Raffi?
  215. Hello everyone... Question..
  216. O/T-ish: News on the job front...:)
  217. A Worm Not a Tumor
  218. Is this normal? Question about my baby
  219. 3 year old son not talking yet
  220. Need A Good NS In Indiana, Having Bad Headaches Scared
  221. O/T: Another job update...
  222. Spinal Tap/Nerve Damage
  223. Programmable shunt and airport metal detectors
  224. question about hydocephalus and judgement personality
  225. Hydrocephalus and Shunt Question
  226. Marilou
  227. Quick Hayley Update
  228. UGH...the old noggin was bullied by the front...
  229. epidural collection for Raffi post icp monitor
  230. Anita or anyone re cisterna-magna shunts
  231. Talked with Gina's mom again tonight...
  232. The good and the bad
  233. Metal detectors okay, but Emily had a problem with the flight itself
  234. I'm BAAAAACK!
  235. And we thought we were the only ones...
  236. Happy Birthday to Marijke
  237. non-programmable shunt surgery 3 weeks ago
  238. Downfalls of the adbominal VP shunt...
  239. O/T: The good, the bad, and the downright ugly...
  240. what is this???!!!
  241. Hydrocephalus ex-vacuo
  242. worried about posting
  243. Trying to tell myself it's nothing,but,I'm not so convinced this time.
  244. A Christmas wish list
  245. O/T, but...WOW...
  246. Did anyone here know Criste Reimer?
  247. OT Being Different Isn't so Bad
  248. Merry, Merry Christmas, everyone!! :)
  249. Headache Question
  250. Can't bring myself to post lately, but am with you daily