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View Full Version : Hydrocephalus (in memory of Braindrain aka Gina)

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  1. Just in case anyone's interested...
  2. more family tragedy
  3. The story of Lacy and me :)
  4. I am very sad now../kinda OT
  5. We FINALLY have a diagnosis for Emily's "episodes"
  6. Back pain
  7. HeddaBaby!! :) Saw this and thought o' you!
  8. Remember me??
  9. I met the Neuro in Mexico
  10. Appointment with Mr Kavar
  11. Two collpased ventricles
  12. Shunt update
  13. ETV-aversary and update on me
  14. What a small world!
  15. Experience of ETV for Jess and anyone else who's interested
  16. Headaches
  17. Erica (MPS girl),Re: UCLA
  18. OT Austin is OK, just neede to vent
  19. Not looking good
  20. O/T..will someone please explain this to me??
  21. Raffi going to UCLA
  22. O/T Prayers needed
  23. Small ventricles, 2 Drs. responses..
  24. Shunttests. and UCLA dr.
  25. Frustrated!!!
  26. Becca
  27. Question
  28. Headaches, their new ideas
  29. my update Sept 22/07
  30. Hey, LIZARD!
  31. terribly sad, “old post” SHUNT FAILIURE / DEATH
  32. "Old" ‘01 -'03 BrainTalk Communities post
  33. intermittent blockages
  34. Okay - more weird stuff and ?s
  35. Pain meds?
  36. ICP monitoring?
  37. New Neurosurgeon!
  38. Appt Finally!!
  39. Can I breath yet?
  40. question re getting your setting changed
  41. Infection?
  42. WHOA...Anyone ever hear this before??!!
  43. Shunt Revision Oct 9
  44. when symptoms occur?
  45. Adult with shunt and going to ER
  46. Nat ? or posting about flushing the valve or catheter
  47. Great news about Megan...
  48. referral to new NS
  49. overdrainage and diarrhea
  50. I officially detest this condition..H/A monster visits.
  51. Praise to my ETV
  52. New NS Appt. -
  53. O/T..Did you guys see this???
  54. Video EEG
  55. arrested compensated hydrocephalus
  56. Back from California with new opinion!!Help!!
  57. Some days..easier than others.weekend at Mom's!
  58. Pain around shunt, headaches
  59. Question for you about Hydro/ House
  60. update on Hannah
  61. Hey Lizard!!!!
  62. Quick update on Hayley
  63. A great essay: "Letter from Your Brain"
  64. Health care plan?
  65. I'm convinced that neuro's secretary must have been having a "Monday."
  66. mouth issues and pressure
  67. good new
  68. When it rains..it monsoons.
  69. Post-op incision question
  70. Growth on incision site
  71. Partially effective
  72. Toe Curling??
  73. Off Topic: Dad has brain cancer
  74. Deborah! (Austinsmom)
  75. ASAP responses please
  76. Hydrocephlus going into remission?
  77. Sleep Study
  78. O/T: Horribly embarrassing Drew revelation
  79. Good books on Hydro?
  80. Raffi's NS app't
  81. Headaches
  82. Played with by the NS
  83. Horribly sad news...one of our own is gone
  84. Collapsed ventricles
  85. In Loving Memory of our Braindrain..
  86. My tears won't stop...
  87. For anyone who wanted to see it...
  88. Grandmother needs prayers..
  89. Something new
  90. to Jordan
  91. Update re:my grandmother from last week.
  92. O/T: Drew's new school placement...
  93. anyone have an Aesculap shunt ?
  94. We were turned down flat!
  95. Life's Headache
  96. Have I done the right thing??
  97. Hello
  98. Happy Birthday Liz
  99. Kathleen
  100. Watch your footing
  101. sorry...
  102. Now that the birthday is over...
  103. Raffi's 8th birthday tomorrow, Nov. 5
  104. Another ER visit
  105. how do you post a picture ?
  106. Epilepsy Awareness Month!
  107. ? for Raffi's Birthday, sort of!
  108. drawing your attention to an epilepsy article I found and posted on CN
  109. Heather (MegnJaxmom)
  110. I heard "When I Get Where I'm Going"....
  111. This weird weather is screwing with my head..
  112. Shunt not draining properly but not dangerous - should I go for the surgery??
  113. just curious
  114. Just heard from Gina's brother, Drew...
  115. I'd like to introduce you all to Raffi!!!
  116. George's humor!
  117. Our Forum Album!
  118. about a forum "album"
  119. O/T - I've turned into Yuletidezilla!
  120. another shunt being added....Anyone with multiple shunts?
  121. Testing my resized pic of 2 of my boys
  122. Re the Forum Album
  123. Trying Picture
  124. still playing with pictures
  125. answer re attachments displaying or not!
  126. Endocrine issues and other stuff
  127. Hmm....... pictures
  128. Here's my picture....I think!
  129. porencephalic cyst
  130. Testing 1,2,3...
  131. Fyi
  132. Hydrohugger!!!
  133. ? re pictures for Diverdown or anyone!
  134. Hydrocephalus Forum Album
  135. Follow-up for ER and confused
  136. Moderator? a sticky request please
  137. generous offer to resize our photos!
  138. Tectal cyst?
  139. Help!! Grandpa just diagnosed with DEMENTIA??? Are we sure???
  140. Managing Gina's LwH excoboard forum
  141. Just a funny...your age in "hydro years"?? :)
  142. A change I made to the Living w/ Hydro board
  143. Might be one of those as yet "Unknowns", but I have a "?"
  144. New member, 41, with congenital hydrocephalus
  145. Photo manipulation
  146. VP Tube in Abdomen
  147. Seizures
  148. Visual distortion / disturbance and perceptual problems
  149. Strange question and maybe even crazy
  150. Question to everyone regarding shunted hydrocephalus effects
  151. Sicko
  152. Talked with Gina's mom today..WARNING...
  153. UCLA NS's???
  154. Need a NS who listens to symptoms!!!
  155. HOLY $H!T...THIS is why I go to MA...
  156. Low pressure
  157. As if we don't have enough to worry about
  158. our bags are packed we're ready to go...
  159. Ya don't say...
  160. Croup and hydro?
  161. Rating Neurosurgeons Web Site
  162. Shunt Fracture in chest
  163. Grrr....keep fingers crossed....
  164. To all you non posters
  165. When push comes to shove?
  166. Update on Megan ...
  167. Hello from hospital!
  168. Obsessed with son's condition
  169. sad news
  170. Heather!!!!!!!!!! Omaha Mall Shooting...
  171. more drama
  172. Jess.....
  173. How to post to everyone
  174. update
  175. Son just diag. w/ SID...please help!
  176. Back from Philadelphia
  177. pressure regulated vs flow regulated shunts
  178. intermittant blockage
  179. Dr. Ciricillo
  180. Wanted to share
  181. waiting and waiting
  182. I just wanted to let you guys know that I am back and willing to talk.
  183. singing
  184. Exams over and done with - now for 2nd year!
  185. Ronniemom
  186. waking up
  187. Local NS visit
  188. Thinking of you All
  189. VP Shunt
  190. frustrated
  191. isotpopes ?
  192. Mixture of diagnosis
  193. infection??
  194. calcification
  195. Back from shunt revision...and now grieving.
  196. What now new Help!!!!!!
  197. arrested compensated hydrocephalus then NPH?
  198. Storms and death and...
  199. Did anyone else get a private message?
  200. hydrocephalus vs. pseudotumor cerebri
  201. surgery done
  202. At last! I have a NS appt !!!
  203. mini happy dance
  204. Merry Christmas
  205. Headaches/ER
  206. how do they tap a vp shunt?
  207. Jennifer With Hydro
  208. escaping from bed
  209. Don't know if you will all remember this but..
  210. Sorry have not been present recently...
  211. Question about Distal Tube
  212. I found this a very interesting story....
  213. I had a "visit" with Gina while I was gone
  214. Happy New Year y'all....
  215. Sinus crap and hydro?? Liz?? anyone???
  216. Hosital 27th-31st
  217. Anyone know Denise Boyer? News today...
  218. Aesculap-Miethke - anyone got one?
  219. Bossing
  220. Foot update.....
  221. Long overdue update
  222. They said it couldn't be done.....
  223. Can crying hurt the shunt??
  224. Programmable shunts and metal detectors
  225. Jennifer With Hydro
  226. some people's pictures show without clicking on them -HOW?
  227. Update a few days late..appt. was Wed.
  228. first visit to ED (ER)...but not for hydrocephalus
  229. Should you tell teachers/professors about your hydrocephalus?
  230. I gotta say...
  231. Newbie (sorta) here
  232. Shunt dependance and exercise headaches
  233. Our New Year Not Starting Out So Well..
  234. Update (had neurologist appt. today)
  235. rehab meeting
  236. JOY??!! Are you out there??
  237. A welcome thread for Samantha
  238. Cranial osteopathy and hydro/shunts
  239. SSEP's result?
  240. Guess who I saw on the news last night?
  241. Had an MRI today.
  242. happy New Year
  243. Reassurance needed!
  244. NS Appt. in MN
  245. working shunt?
  246. unbelieveable
  247. Overdrainage
  248. Intracranial Pressure Monitor. date
  249. Exercise problem
  250. Penny