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View Full Version : Hydrocephalus (in memory of Braindrain aka Gina)


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  1. Had my revision on Tuesday
  2. CT scan unchanged
  3. shunt tap
  4. Roll Call anyone?
  5. Question about programmable shunt...
  6. MRSA bacteria
  7. ct scan on disc
  8. Federal Support for Hydro Research
  9. Tinnitus
  10. Heather-MegnJaxmom
  11. pre standard symptom warning?
  12. Drinking a ton of water can help headaches?
  13. share our email addy's
  14. about sharing our emails addy's
  15. need toddler advice
  16. Potty Training
  17. thanks for toddler help
  18. Third ventriculostomy
  19. I have congenital hydrocephalus
  20. I figured it out!
  21. Finally!
  22. Back to Physical Therapy
  23. Long night. . .
  24. can someone help Harriet?
  25. Is hydrocephalus a disability?
  26. Noah's Grandmother
  27. Kathleen
  28. Back in ER on Monday...
  29. Gina!!!!
  30. Matthew's 'ridges'
  31. Hi Everyone
  32. More headaches......need advice!
  33. Surgery
  34. We are here!
  35. Reallllly hard recovery
  36. change in symptoms of failure
  37. 17 mnth. old Hydro. & not talking yet
  38. Matthew's CT images
  39. I decided to start a new thread...
  40. new member here to brain talk!
  41. Had Hayley's IEP Meeting
  42. Are amusement park rides okay to ride with hydro?
  43. It's happening again
  44. All set for surgery and they changed it!
  45. Happy Valentine's Day!!!
  46. Please post your name for a hydrocephalus chat room.
  47. O/T..need some ideas for a fundraiser..
  48. Hydrocephalus Chat Room is Now Open!!
  49. Hello everyone!
  50. Guess who's going potty?
  51. Penny I did reply in a PM
  52. Pregnancy Question
  53. Our MN trip
  54. ssems better after surgery but.......
  55. Just went over to the "new" chatroom....
  56. Coma/Warning/shunt Failure
  57. Hey Gina....
  58. Anyone Like To Chat
  59. Question for y'all...
  60. need some chatroom schedules
  61. O/T..Public speaking..
  62. doing the happy dance
  63. Another injury to add to the list!
  64. Barometric headache...help!
  65. Question -- Peripheral vision effected?
  66. My Update
  67. help--what does shunt infection look like?
  68. syringomyelia and hydro
  69. Topamax
  70. Hello! And any help with my VP shunt problem?
  71. Hydro Chatroom: overlapping the tome zones
  72. 5 EST hydro chatroom has real people in it!
  73. when do you find more people tend to be here?
  74. Started my nursing degree and...
  75. set the day & time you want to chat!
  76. End of the line????
  77. Hello - new here
  78. Help, please! Ongoing headaches and vision issues...
  79. noise sensitivity
  80. installation of shunt surgery
  81. post op cognitive function
  82. Roll call time,everyone..check in.
  83. My name is Jennifer and I have congenital hydrocephalus
  84. Vision issues and school... Help!
  85. O/T..I may be away for a week later this month.
  86. my setting change got cancelled
  87. anxious to hear about your C section
  88. Hydro chat room
  89. Question
  90. ETV or aqueductoplasty
  91. You know spring's on the way when LIZARD's
  92. Going home
  93. If you don't like me or what I have to say
  94. If you don't like me or like what I have to say
  95. Swollen shunt site...can this be caused by illness?
  96. OT but wanted to share!
  97. Assertiveness/improving self-esteem
  98. Arizona Trip
  99. The Reason I don't answer Your Post.
  100. I feel worse now
  101. Let's work together
  102. attention Nathan
  103. A quick Hello...
  104. Shunt longevity
  105. amantadine
  106. I like Sports, going to church, and trying to make friends.
  107. Going to the NS today...
  108. cold seasson vs. warmer season, and over draining questions
  109. Cranial expansion?
  110. Heading South!
  111. Shunt Tract Pain
  112. possible hydrocephalus in utero
  113. cisternogram and ICP monitoring
  114. Colds/flu...
  115. Definite Shunt Failure
  116. It's a girl
  117. Happy Shunt-A-Versary Becca!!!
  118. We took another helicopter ride
  119. kathleenandjoe
  120. Is it bad that
  121. CT Scan on CD!!!!
  122. Hi from lemontree/child life therapy anyone?
  123. Shunt failure
  124. Is there a connection between earwax build up and hydrocephalus?
  125. Ears Popping-Is this what a plane is like?
  126. Soooooooooo frustrating
  127. Outta here!
  128. Being admitted
  129. ETV in 2 weeks
  130. Is it malfunction?
  131. NPH Hydro or not?
  132. Any Recommendations for a Pediatric Neurosurgeons?
  133. So...are we still together on the book??
  134. Becca Doing Well!
  135. I officially protest weekends
  136. Achy, breaky wisdom tooth...:(
  137. Lisa Jean
  138. Another ER trip
  139. Becca out of surgery
  140. FAO people in the UK - travel insurance?
  141. Doctors need to listen
  142. Reduced memory after a lot of surgeries?
  143. O...M...G...I hope I straightened him out!!
  144. Kathleen
  145. We are home. For good.
  146. ?s about Megs
  147. Leaving today
  148. Communicating/non-communicating hydro - what does this mean and what's the difference
  149. Just a quick question - should this be a concern?
  150. Seized
  151. hydro and brain damage
  152. Megs update
  153. I know I have said this before - getting blood out of me is like.....
  154. Here we go again. . .
  155. Central Vertigo? - TO LIZARD (and ALL..)
  156. Update on Becca
  157. Full moon??
  158. I'm getting a laptop!!!!!!!!!!!!!!!!! :)
  159. Question about mobility
  160. How do you hold it together?
  161. We are home. Again.
  162. Not sure...
  163. New here...
  164. Kathleen
  165. Wishing Hayley
  166. Telling others about your hydrocephalus
  167. Is there any Medic-Alert type bracelet/etc for ETVs?
  168. Anyone know about Dandy-Walker?
  169. The roller coaster ride is not over . . .
  170. Hiw would I go about telling others about my hydrocephalus
  171. hello I'm new here
  172. Opinion on some symptoms/issues
  173. buffalo hump
  174. I just saw Ms M. on the Good Friday appeal...
  175. Saw a video at uni a couple of days ago...
  176. home
  177. VP shunts, headaches, exercise, stress
  178. pictures
  179. Pseudocyst symptoms?
  180. new question
  181. Global Warming is gonna KILL Me!!
  182. question re: eyes
  183. Getting concerned but trying not to
  184. Flushed cheeks
  185. Check out this cool site!
  186. OT- on overload
  187. Question on possible tubing replacement...
  188. flush the shunt?
  189. used to be a member but......
  190. Cardio called Back...
  191. boggy head
  192. Curious about scar tissue issues...
  193. Shunt infection and then brain abscess
  194. Finally home
  195. c.s.f leaking from burr hole
  196. Kathloeen - how's Becca doing?
  197. Surgery Thursday and update
  198. Had my Shunt Study and CT today
  199. getting worried
  200. Just like a knife
  201. I haven't had any problems
  202. We're home!
  203. Poor self-esteem i.e. Hydrocephalus
  204. Update on ETV
  205. MRI Questions (2)
  206. MRI and noncompliant ventss??
  207. Can a cough/cold significantly worsen things?
  208. Yet Another Question
  209. What do you do for med insurance (adults)
  210. Sharp pain at the head incision
  211. arm band or something?
  212. kinda O/T
  213. signs of overdrainage
  214. MRI without sedation
  215. O/T: OMG...My heart is shattered...:(
  216. Well...made it to 29...
  217. Have NSG Appt today - get test results
  218. Gtf
  219. %$(#* Programmables!!
  220. O/T ...trying to thing of what it is called...
  221. Question for all you moms...
  222. Kathleen - how's Becca doing?
  223. Raffi's Had MRI and A BIG QUESTION
  224. Another Question
  225. OT: Caren's ablation all done!!!! YAY!!!!!!!! :)
  226. Not taking chances now
  227. O/T: Anyone 'sides me gonna wear...
  228. Welcome Owensmommy
  229. Pumping the shunt
  230. The price I pay for spring...:(
  231. Howdy from my new laptop!! :)
  232. Okay...this LIZARD is not allowed to...
  233. Self injury question
  234. Just when you thought it was safe to come out of the hospital....
  235. Cost of Consult
  236. Hayley Cardio Update and Other News
  237. Diamox for Raffi???
  238. CT scan ok
  239. 17th anniversary of the day we thought...
  240. Great news about Austin
  241. Any new Becca news??
  242. Who'da thunk that getting a wisdom tooth...
  243. Staph infection/MRSA and shunts
  244. Canadian Listener..where are you??
  245. OT/Mom is End Stage - Prayers Needed
  246. clicking shunt question
  247. Question??
  248. Ultrasonic treatment of proximal catheter obstruction
  249. Raffi's MRI report
  250. Question on overdrainage