- Glad this site is back online! - CSF Surgery
- Glad this site is back online! - CSF Surgery
- Back in Business
- Just a warning do'nt ever get a shunt for your leak!!!!and more
- csf leaks
- Useful Websites
- Living and Functioning with a csf leak
- Needing symptom info
- horizontalhandmaiden
- Traumatic CSF Rhinorrhea
- Seeking information regarding csf leaks
- 2 weeks after blood patch
- Help with Potential Leak Symptoms
- Now what?
- Hang In There Ed!
- Questions from Ed
- Whew! I finally made it in here!
- This was sent to me from a guy named ED
- Repeat Leaker Update
- Is it ok to "muddle" through?
- Question for Cranial Leakers
- Attention:Baffled
- Recovery time after 2nd patch?
- What Good News!
- Happy Holidays!
- Edward....How are you?
- Epidural Blood Patch Efficacy
- How do you find a Doc that knows something about CSF leaks in the head?
- Dizzy Spells back again
- Cranial vs. Spinal CSF Leak
- Just what I didn't want!
- CSF Leaks presenting Sinus related symptoms
- CSF Leak and Hormone Levels ??
- Attn: Head Leakers
- "Pain in the Neck" is NO pain in the neck!
- Any of you Head Leakers ever have an Infection also?
- Another cranial leaker here!
- A question for Maryland........
- Need Help Please, what is this?
- Pain Management
- How Is Everyone and Thanks for this Board!
- SALTY taste - salty feeling in stomach
- CSF Leak and pregnancy
- Hopkins appointment update
- I haven't forgotten you Jaded
- Still waiting!
- Well, don't believe everything you read
- Depression
- Drug interaction with intracranial hypotension
- Update
- Similar syndrome - for Concerned Gal
- Heard back from the Mayo Clinic
- Having a CT-Myelogram? Here's a tip
- Pressure and Arm Numbness
- What do you tell people??
- Philough.....could you elaborate?
- I meant Fillough.....could you elaborate?
- Increasing CSF production w/ Theophylline (also known as Dimethylxanthine)
- Which doc to see, where to go, please help
- CT Myelogram next week
- Food Sensitivities?
- Update and How Are My Fellow Ear-Leakers?
- Is this my new normal?
- Hello SuburbanLady
- Anyone having vision problems due to CSF leak?
- George Clooney could help
- Average Healing time
- My Surgery
- New Member
- Medical Tourism, any good Neurologists/Neurosurgeons in Thailand?
- Anyone else have (or had) a shunt?
- Worth Checking Your Thyroid
- Weary Wife, Concerned Kids, Leaky Husband.....
- Yahoooo! 10 For Our Side!!
- how much water and or caffeine
- EBP Clinical Trial in Texas
- Interesting article on alternative to EBP ... eman?
- Abdominal Binder article
- what headache meds to try?
- Happy Monday! Contacted NORD for info/help?
- Spontaneous leak article by Dr. Schievink
- Dh's 2nd / 3rd EBP Today!
- Leaker Roll Call
- botox injections for headache
- Tegretol ... met with Dh's Neuro today ....
- Occult spina bifida
- New Leaker
- glucose strip turned positive
- Excellent book on how doctors think
- Ear leakers.........have you tried recording.
- My trip to Cedars-Sinai
- Had Cisternogram, Still Undiagnosed
- Modify Name Forum CSF Leak
- Everyone needs a good laugh, especially at someone ELSE'S expense....
- Alternatives to pain MEDICINE ... pain management tools!
- Pain in the Neck/Shelly - Where are you???
- Hey All
- Lumbar Subarachnoid Drain ????
- Why can't my leak be located?
- Reading/Vision Causing Increased Headache Pain (occipital neuralgia)
- Antiphospholipid Antibodies and Thrombocytopenia
- Dye study Scheduled!!!!!!
- A Message to Baffled
- Fibrin Glue
- leaks and air travel
- Creepy Crawly Skin
- Did anyone see this article?
- Interesting/Scary Mtg with Neurosurgeon
- Who and Where are the Head Honchos of CSF Leaks?
- Marfan and CSF Leak
- Choroidal fold (blurry vision) update
- Queen of Denial
- Cedars-Sinai patients - watch out! $$$
- CSF Leak symptoms
- Headache Journal
- Question about CSF Flow Study
- Jess
- Possible cause of creepy crawly sensation....
- Woohoo, let's say it altogether now ... "Admitted"
- Has anyone tried Cranial Sacral Therapy for head pain?
- Low platelets blood patch.........?
- full recovery
- "Coughing" up my sources ... LOL
- So Far.....
- great news/bad news
- Imaging.....
- Lots of gratitude
- Ignoramious ER DR!
- CT myelogram in ..... jury still out
- Neuro Appt
- We're getting a patch ...
- csf leak and ear pain
- Amitriptyline
- Link to a case study
- Jess,..How are you doing?
- Six days post patch ... update
- Elusive Fibrin Article...
- Blown patch .... here we go again....
- Back to the Drawing Board!!!!!!!!
- Disability Claims
- Help please
- Cisternogrphy vs Myelogram detecting spinal leaks
- OT: My Father In Law
- a new pain drug being developed
- Anesthesiologist will read my fibrin research and consider!
- Chiari>Autism>CSF Leak
- Vascular concerns
- Epidural Blood and Fibrin Patches...
- should i get a blood patch?
- Tay's ICP results
- Curing CSF Leaks and Meningeal Weaknesses
- Leakers UPDATE!
- Specialist in the northeast?
- Simple Things and the Leaker...
- How to avoid a relapse
- Fibrin glue update, my story
- Where are you GingerLox?
- Schievink Consultation Questions...
- Research, Articles, Journals, Studies, etc.
- Hello Ed...........question for baffled!
- Ever heard of a steroid injection when EBP fails?
- Leak location/pain location relationship
- Not sure if I have CSF
- Making "HeadWay"?
- Drain question
- MR Imaging article....
- Newly Diagnosed Leaker Seeks Advice
- New To Site With Questions
- Vent Alert!
- Dh Duke vent/rant/what-the-heck-ever....
- Measuring Pressures
- FDA ALERT - Gadolinium-Based Contrast Agents for MRI
- Had EBP at Cedars
- Caffeine IV's
- New here - possible csf leak
- Newbie w/question about CT Meylo and other stuff...
- Oxycodone Rebound ?? (NO tylenol added)
- More meds feedback .....
- Exploratory Tympanotomy Anyone?
- Old leaker returning to forum
- Calling all leakers!!!
- Dr. Visit Yesterday - Results
- Moving forward ...
- ADVICE from leakers
- anyone had these syptoms
- Taylor Update
- Headache Intensity
- Recovery - what does it feel like?
- Saw something interesting on TV...
- Dreppression. How to deal with it?
- Neck pain and stiffness...any suggestions?
- Doctor Saw Tear On CT
- Hydroxyapatite Cement -ever heard of it?
- Cool imaging software!
- Epidural Fibrin Patch SCHEDULED!!!
- You can believe how great it is to find this forum - help!!
- Any good Neurologists around Seattle area?
- Fibrin Patch Update and Information you don't want to miss!
- Causes of CSF Leaks - pseudotumor cerebri ? ?
- Does anyone get pain in their alleged leak locations?
- Fibrin Sealants ... MUST read for anyone considering!
- Chiari Question?!!!!
- Sphenoidleaker
- Eman - Duraseal info, CoSeal info .... more on fibrin
- Surgical Sealants "101"
- Chiari or SIH? Check out this Baylor Case Discussion
- Help getting right diagnosis
- Mystery Diagnosis, the show!
- CSF Leak and flying
- Have approval to see Dr. Schievink/Fibrin glue injection
- Repeating DH's Fibrin Patch ... update
- Anyone experience visual/smell disturbances???
- Newbie looking for some information
- Diagnosed with CSF leak after MVD
- it's so dreadful.
- anyone completely healed?
- Surgery for Repair ???
- Hope this brings a smile
- Is "Relaxin" linked to csf leaks?
- Change of Symptoms After Cranial Surgery
- Topamax
- Completely frustrated with doctors(rant warning)
- new to sight
- Mayo Bound Monday - Any advice
- frustrated with symptoms.
- Leaking only when pressures are high
- GOOD NEWS! Spontaneous healing!?
- Back from Mayo
- Returning for second fibrin patch
- Tamaretta/Tay ?
- Anyone ever used litmus paper to test fluid?
- meningitis caused by csf leak?
- Help! Not doing good, strange symptoms!
- One Month Post Op Different Symptoms
- symptoms symptoms...
- pledgelets cause infection???
- More Questions about Pledegets(sp)??
- Just curious
- Twas The Night Before Fibrin, And All Through The House ....
- Stem cells?
- POST fibrin patch update
- Hospital admits not to know handling of CSF
- What does this mean??
- 'New' Headache is back ...
- WashPost story about persistent headache patient
- frustrated/seeking Dr. advice
- frustrated/seeking Dr. advice
- frustrated/seeking Dr. advice
- Hi, I am new here - a few questions
- Not his department