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- Carly's (and my) brush with a famous person
- No flippin wonder I'm broke!!
- I should not have asked....(long!)
- Med Bills .. how do you manage & stay organized?
- Anyone ideas???
- OT - first real meal
- Car Seat Question--- help needed
- More weird stuff and ?s
- Help?!?
- botox tomorrow
- Has any of your children had Rolfing or Myofascial treatment?
- Continued sleep issues and a big belly
- Word of advice!!!!!
- Why does he only do this when Daddy is at work?
- I always have questions....LOL
- Service dog update
- tooth mystery solved
- Ot - alittle help for a old friend
- PaulaScott---
- Good morning
- Come look at pic and give some advice :-)
- Sharing great news!
- Met a certain little "birdie" this afternoon
- OT:The people who aren't there, You might be a ******* if..., and bathtime hillarity
- Very OT/ but I need to vent
- Roll Call - October 2007
- Munchausen by Proxy Syndrome article
- Got Katie's outfit finished
- Had to share with you all.......
- Happy 1st Birthday "Angel" Lucas
- working moms ?
- I am freaking out a little...
- DH is in serious trouble!!
- Trying to get organized....
- Get Out Your Kleenex- This is a Must See
- EEG postponed
- Hip surgery again?
- Go Karts
- Thoughts on Chronic Pain and Comfort
- OT/prayers needed
- Long Time No Post - Eli surgery
- any experience with lamictal?
- Sci Bill...language question re Chiari
- wonderful school news and a question
- I hate the teacher
- Pics from the Autism Speaks walk today.
- Dare I say it...1 year seizure free
- Micky
- I officially detest this condition..H/A monster visits.
- I finally got a free second to update
- Strange reaction to music
- Lost SSI, Now have to drop Insurance
- O/T..did anyone hear about this??
- Extremely important funding meeting coming up and question about overseas funding
- Article on Special Needs Siblings
- Matt
- I can't believe we messed this up!
- OT/ I'm doing better
- Happy 13th Birthday Megan
- Anyone want this? :-) Shopping Cart Hugger
- EEG tomorrow
- Lucas Barry carepage update...you have to check it out! Warning..tissue alert!
- ARGH this waiting is driving me nuts....
- Has anyone else heard about this???!!
- Physical Therapy Ball Pit pics
- Done with all the appts. still no answers
- NC State Fair
- Department meeting. Nothing really gained, but at least we know the challenges!
- Carving a pumpkin
- We have a date for the VNS implant replacement = prayers needed.
- How significant are blood levels of AED?
- New photo of Adam...come see his 'cute' shirt!
- video eeg results
- Rachel's appointment and a little pity party...
- Well, can you believe................
- Metabolic Panel
- Riley is a keto kid.....
- EEG results
- Amazing improment in the swimming pool
- Welcome to the "real world" to me!!!!!
- Too many specialists
- Checking in after not being here for a while
- Lacy, when you lived around here dd you ever hear of......
- The obscenity of brokerage fees :(
- THe VNS should go ahead tomorrow and seizure tonight!
- Birthday video montage
- Hatchback shoes- FYI
- 5.54 am and we are off to hospital = crikey
- Denae..............
- Inspirational story - old man has seizure operation
- Is this a common side effect of Lamictal?
- Kelly (Jenelle's mom)
- The operation didn't go ahead. Competition = Free ragtime CD if you know why!
- The winner of the CD is. What really happened. You are invited to attend performance
- hey Rathykay...
- I think we might get Katie a potty chair
- <insert dirty words here> drop seizures-
- Some what would you do's and btdt
- Great news to share!!!!
- O/T Any Days of our lives fans here??
- Problems on the bus
- PaulaScott
- botox etc. update
- J&K Mom (Mickey) - pics of Jimmie using hugger
- OT: America's worst case of foster children abuse. I have a question.
- Screaming babies. I was right !
- We have a new date for the implant = yeah right
- I'm convinced that neuro's secretary must have been having a "Monday."
- Jenna about the bike
- Kara being a big girl (pics)
- When it rains..it monsoons.
- oral Baclofen question
- My NEW OLD VAN!!!
- vettey...
- Picture of Alize
- OK... I GUESS I can see the humor in this NOW
- VNS op scheduled for tomorrow is now off!
- For those of us concerned with timing of Vaccines in our kids.
- Happy Fifth Birthday, Jenelle!!
- I missed the freakin' call!!!
- Neuropsych testing question
- no seizures- prayers please
- A photo of our new 5 year old!
- 14 Fires in Calif.
- Ouch!!
- Another Heartwarming Story- Get the Kleenex Again
- Vicks Vaporub... PST Dori
- gelastic seizures?
- Nurses or Danielle, help with bloodwork results...
- may have to end casting...
- phobias.
- neurogenic bladder - botox?
- going to MD/VA for long weekend
- Another one of our members is gone. :(
- Bumbo seat recall...
- Keto Questions-
- Changes in medical care after turning 18
- SCARED!.....spica cast??
- update on new kitten and pets
- I hope everyone has a fantastic weekend I'll be computerless!!!
- Picture of Miss Megs
- I Got approved today for attendent Care coverage by Medicaid!!
- Aunt does not have lung cancer
- The rectal medication problem continues. Hey what is the situation where you live?
- Education Issues
- For anyone who wanted to see it...
- Grandmother needs prayers..
- A nice Sunday
- Anyone have experience with this type of jogging stroller? And update....
- Happy Birthday Robin (Wheeliebird)
- I have composed another variation on 'Twinkle, Twinkle Little Star' dedicated to ..
- Neuropsych testing for Sarah
- Please tell me about Risperdal - experiences & opinions
- Any Thoughts on What's Going On with Langan? (long- sorry)
- trying to stand?
- A first for the boys..
- Roll Call - November 2007
- Drew's Crew says Happy Halloweenie
- Back from Keto meeting.
- Carly's Endocrine Appointment
- Update re:my grandmother from last week.
- :( Don't think the increased baclofen is gonna work out---> seizures
- Geneticist pushing for a Rett dx
- hi everyone some new pics of my kiddos
- Nice story
- Got Katie's new Gecko
- I Think She's Acidotic. Grrrr.
- Halloween Pics - The doc and the driver!
- Super Man!!!!! and candy!
- Some Pics and a little update!
- My parents are heading south for Florida, they left yesterday!!!
- duh moment
- Halloween pics
- Kara Halloween Pics
- saw the behaviorist for a little while today
- Tomorrow is Liz's birthday!
- The Birdies.. (get the kleenex)
- DRD Video on Facebook
- For Robin - wheeliebird, and anyone else living independently but needs assistance
- Denae, I got your PM and.......
- Anyone else see this about gas prices?
- A little update + a recent picture of me.
- Don't forget to "Fall Back"...............
- New Pics!!
- Bath v/s shower
- Cute Website!
- Micky-check your pm
- Epilepsy Awareness Month!
- Awareness calendar
- Epilepsy gene article - I hope this post works!
- Langan Update- Grrrr
- Three cheers for us. This is the second time we did it :)
- Large print book site...
- CAP-C nurse and seizure counts
- I actually found a doc who still makes "House Calls"!!
- MIL in hospital
- matt to make class presentation
- Advice Needed
- Rileys Keto admision date is...
- Swelling in my legs - any suggestions?
- matt's poem
- Seizure or CVI?
- IEP meeting - what can I say :mad:
- Our holiday plans in January looking promising regarding respite for Grant :)
- What's everyone up to this weekend??
- Question about vision
- Yet another vision question :-)
- Warning: Bragging Mother
- Is this common?
- Grant's seizures getting out of control Hospital by ambulance possible :(
- Jimmie crawled!
- Ambulance will be called soon :(
- Just thought we'd post
- SO sick of all of the intrusion
- Are you getting email notifications
- Absolutely amazing. Grant didn't go to hospital.
- Pic of me & Kaite
- Anyone heard from Kori (chloaver)?
- depakote sprinkles and other stuff!
- Always the bridesmaid....
- My Mom's a saint, but...
- back to the ?is it a seizure? question...ugh
- Jimmie's MRI scheduled for 11/20
- Question about Diet for seizure control
- Our newest addition!!
- Ambulance phoned. Seizures out of control. Blood coming out of Grant's mouth.
- What the gastro doc said about the Oozing PEG with pics.
- Christmas Gift Idea(s)
- "I'm Tyler" - Ability Awareness
- There was blood oozing out of Grant's mouth. Very rattly. Doctor and probably hospita
- Mom the Saint strikes a stranger this time
- Ambulance Phoned.
- Spoke with SPED director today
- Nearly 24 hours seizure free/ sad news too.
- Nice Video
- Keto diet
- Need Help! Alveolar Hyproventilation Syndrome
- Keppra and ear infections
- I was not the most popular mom today
- Life is Good for me!!!
- Hoping to hear an update on Grant
- Has anyone heard from Sarah ( Sarahndipity)?
- The Best Babysitter Ever!
- Baby born "asleep"
- OT petty and unchristian behavior
- cj/mothers heart
- Remember care givers - take care of yourself
- Balloons for Grant (Paul from Australia)
- For Tiger76 or anyone else who has personal attendants coming into thier homes.......
- Maybe a crazy question but can depakote sprinkles...
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