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  1. OT: Daddy back in the hospital
  2. gina marie
  3. Surgery 6/18
  4. Nick's NHL Hockey Blog + epilepsy doc today
  5. neuro visit/carnitor
  6. sorry double post
  7. Neurosurg appt
  8. Yesssssssssssssssssss!!! Praise The Lord!!!!!!!!!!!!!!!
  9. school eval results
  10. Update...
  11. Want your opinions/thoughts
  12. MAW news
  13. Happy 12th Birthday Noah!!
  14. Made her do it tonight
  15. Grant did it. The first time in about 8 years. We are thrilled :)
  16. O/T...Grandmother near the end,not what I need right now.
  17. Time to pick brains again
  18. Appointment TODAY!
  19. Okay, I am offically a crazy mom, crying over a brush...
  20. What is going on with Nicholas?
  21. Big Win for DD Kids in US Supreme Court today
  22. O/T...Is it flu season??
  23. Happy Birthday Jimmie!
  24. O/T: FURIOUS at Facebook!!!!!!!!!!!
  25. o/t My mom passed away on Saturday 6/20/09
  26. accccckkkkkkkkk A RACCOON keeps trying to come in and I want SLEEP!!!
  27. Any info on Banzel?
  28. incontinence suppliers/brands?
  29. It Was a Good Day :-)
  30. Post-op constipation
  31. YIKES!!! I think Katie may be giant sized! LOL
  32. Spencer's Vantage needs a new home
  33. More agency woes = how pathetic is this!
  34. OT: funny - pics
  35. not sure what to think? eval results
  36. O/T..Michael Jackson and Farrah Fawcett are gone
  37. now a shoe...
  38. Anybody need a Theradapt Chair?
  39. Anybody need a full body wetsuit for a child under 48"?
  40. Challenger softball team
  41. Mary...
  42. Issues with high temps
  43. O/T: Leaving town tomorrow...
  44. Doctor visit and cute story
  45. Apology..still thinking of you and your kids but..
  46. Topamax sprinkles
  47. OT - Feds recognize medicaid home services cuts as a civil rights violation
  48. Case management nonsense. How much would you charge for a phone call? How about $....
  49. Don't you just love how people group others into one big group...
  50. Hydrocephalus after Corpus Callosotomy
  51. o/t- Update
  52. Prayers needed for Kyle!!!
  53. Apparently Zach's been working with the dog!
  54. swollen eyes/petechiae
  55. Wonder what my David's been up to lately?
  56. Cool (sensory) find
  57. new neurologist and another amusment park visit -pics too
  58. drop seizures and singing
  59. Weird sleep question
  60. Hi Everyone - thank you for the prayers a while back!
  61. Life is a Challenge
  62. Roll Call - July 2009
  63. vacation ?
  64. Jake knows his way home!
  65. totally completely off topic: replacement windows :)
  66. Another not so new word, and boy do I feel stupid...
  67. Vimpat? anyone? starting to lose seizure control again.
  68. Okay-crazy caregiver arrangement..Anyone with experiences similar??
  69. Agency woes. I don't think it can get worse than this
  70. Docs should tell you these things...
  71. Anyone wanna be my featured child?
  72. CT for cholesteatoma today - positive vibes please
  73. Good news to share!
  74. OT/ What's the matter with me!
  75. Jimmie's page is up!
  76. OT: The case of the lost mail!
  77. I'm technically savvy today
  78. MMA...micky
  79. Hubby update
  80. Videos may interest/clinical trials request
  81. Ot: stupid cholesterol
  82. Not sure what to expect ...
  83. Carly may have that weird virus again :(
  84. Alize
  85. He sang it on demand!!!!!!!
  86. Nighttime bedwetting underpants
  87. She has a low grade fever
  88. More testing....FYI
  89. For those who wanted to see it..Alize's obit.
  90. Carly's still not doing well
  91. little worried
  92. Last hubby update for awhile...
  93. Update on us...not good...anyone want to copy this to Hydro and Chronic Pain for me?
  94. Neurologists?
  95. MAW meeting today
  96. We have respite!
  97. sensory integration
  98. She's gone...
  99. a prevention/cure for hydrocephalus?
  100. Need advice on mattress
  101. heads up on pedicraft head/foot boards
  102. Katie on a trike
  103. Coated Tongue
  104. Raglet
  105. OT: Stupid Choesterol. Now Stupid blood pressure 189/122
  106. O/T: Fixed Facebook problem :)
  107. O/T-ish: I am a Keppra convert...
  108. If you're ever bored
  109. Low CO2 question
  110. Grant did it. First time in 8 years, plus Judge Judy and Invisibility Cloak :)
  111. Make A Child Smile- website
  112. OT: Hey Donna. Please check your PM
  113. OT: Hey Donna, follow up PM regarding statins, cholesterol etc
  114. Carly update and a duh moment
  115. Happy birthday to the 'kissin cousin ' :)
  116. Tonight a HUGE accomplishment, I am SO proud
  117. Hannah's trip to UCLA
  118. Happy birthday master Adam
  119. blister
  120. Question and good news
  121. OT: Charlie's doc visit
  122. slightly OT: Funny boy
  123. Now we need to change neurologists!
  124. O/T: Full dose of Keppra by the weekend...so far, so good!
  125. CT scan and ENT results were
  126. Update and More Questions
  127. Robin is at our house.....
  128. OT: Exercise Stress Test tomorrow and who can read the docs writing?
  129. Grant has nasty skin infection. Docs dumfounded. PIC. Nurses here help please?
  130. Doctor visit woes and Harry Potter Guffaw
  131. OT: My stress exercise test results. pic to prove it. Dr brought it on
  132. The best kiss ever
  133. Is it really back?
  134. Pressure Vest for Katie
  135. Ri's Pedicraft is here!!
  136. Carly update
  137. Thanks Mike and David
  138. Grant's infection lates with pics and sandpaper dermatologist
  139. OT: Frustrated with being turned down by race orgnanizers!
  140. Caitlin med reduction! :)
  141. weighted vest at walmart
  142. Announcing Grant's story in pictures and music just for you. A must see :)
  143. Took Me Awhile To Find My Wings...
  144. Hooray!
  145. MPalmer118.....How is tx going?
  146. Dustin having alot of Acid Reflux problems
  147. Asperger's Syndrome
  148. Skin infection. Possible allergy! Biopsy? Cortisone cream. Still mystery with pics
  149. Test results -confusion
  150. Roll Call - August 2009
  151. O/T..Prayers needed-my little nephew.
  152. Wondering
  153. We're having a good time on vacation!
  154. OT: Why I hate computers part (you put in the part number) :)
  155. MAW trip scheduled
  156. so tired...
  157. Ri's Birthday, pics and finally nurses!
  158. ARGGGGG!!!!!!!!!!!!!! I am going insane!!!!!!!!!!
  159. Nephew update Monday..
  160. Generic Depakote - Divalproex Sodium
  161. Diet for metabolic disorders
  162. Revelation Time! Grant's B12 levels are extremely high!
  163. Did you have a grief period?
  164. Tom's Neuro Appt
  165. Here are the nutrients that Grant is on. Can't see vitamin B12. Can you?
  166. communication
  167. What the allergist said. Probably hay fever, and tearing the ARL test to shreds.
  168. I think I know why Grant's B12 is so high. Well duh! We should all feel sheepish!
  169. Big week - more about Carly, too
  170. Should I Go To My Senior Prom?
  171. Monitoring/tracking devices
  172. Here are the lab results
  173. OT - Do you know how your state is spending their new Medicaid billion$?
  174. Grant has gone to stay with his 18 aunties for two weeks :)
  175. Prevacid ?
  176. Melatonin questions - those with experience please chime in.
  177. Just spoke with Genetics
  178. Carly is being very difficult
  179. Nutrionalist/psychologists response to Grant's high B12
  180. Seeing lots of doctors and quite the lack of communication going on
  181. whohoo! Respite!
  182. kind of o/t but not really- seizures and me
  183. Ambulatory EEG underway - question
  184. Herbs.......(OT)
  185. Kait's language skills :-)
  186. Jake's new baby brother
  187. Paula Scott
  188. a little OT, but can't hurt to ask!
  189. Grant just had a 10/10 tonic clonic at the nursing home. Not good timing
  190. Happy 14th Birthday Adam!!
  191. O/T Missing Mom in Pottstown, Pa
  192. Humor me on this..we are keeping 2 of my brother's kids for the weekend.
  193. We have a respite carer
  194. Daylesford holiday pics with videos and Lily the wonder dog :)
  195. Baby born "asleep" - now at 2 unsteady
  196. Rileys going from Felbatol to Banzel, it stinks!- and the IEP
  197. One down.....
  198. Max has been in the hospital since Sunday
  199. Pictures from Ri's big party
  200. ADULTS ONLY. What Grant did on his 21st birthday video.
  201. Siezure on second day of school?
  202. Jimmie's a big boy going to school and seizures...
  203. the effects of NICU stays on SN parents - article
  204. Tehya update
  205. Carly will go 1/2 days next week
  206. Carly the Complainer
  207. How do you get Medicaid to pay for diapers?
  208. update on me and ENT surgery
  209. Behavior Issues....HELP!!!
  210. OT: Charlie
  211. Denae..
  212. Gtube sites/resources?
  213. Quick update..
  214. Apraxia??
  215. O/T..Well,now I know what my brother and SIL deal with on a daily basis..
  216. Is there a site that lists the best/worst states for SN families?
  217. School tomorrow, but a very difficult weekend
  218. Grant is back from nursing home. He had 2 bad seizures and the latest news.
  219. We see family doc tomorrow for all clear of Grant's rash, plus B1 high and B6 high!
  220. The contracted staff mucked up at the nursing home with the feeding tube.
  221. Felbamate?
  222. Grant looks yellow :( because of nasty AED. Time to stop
  223. Here are Grant's vitamin and allergy results = high!
  224. Up only twice in the night
  225. Banzel- harder seizures?
  226. Ginamarie how are you?
  227. Denae..not sure if this was about Ri or not..but wanted 2 ask you.
  228. Last night and today
  229. She Slept!
  230. Completely OT: Most romantic thing I've heard in a long time
  231. Heather Riley Needs Prayers
  232. Rileys in PICU
  233. Grant extremely unstable. Hospital a possibility. Prayers please.
  234. Paraldehyde is difficult to get from container quickly. Advice needed.
  235. Grant's clustering. VNS prof suggested Keppra. Starting now.
  236. Riley update?
  237. The straw that broke...
  238. Seizures are back
  239. Saturday 11.47 am. Grant more stable but now vomiting
  240. Saturday 11.pm. Grant extremely unstable vomiting and tonic/clonics
  241. Hey guys,pray for this little guy!
  242. Sunday. Phoning for ambulance. Prayers please.
  243. Sunday Day 1. Grant is in ICU and intubated
  244. We are home! and a pic or two
  245. Monday morning day 2 in ICU. Good news and frustrating news.
  246. The news you have all been anxiously waiting for. So, so important
  247. Would school have to provide ASL aid if I asked?
  248. Want to see the kids clothes I sewed this summer?
  249. Monday evening. Grant's ICU news. Some good some not so good.
  250. Need your opinion!!!! Mole (pic)