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- My pics from DC and one cus he's cute. lol
- Update: Jon is OUT of CCU!
- Took David to er thinking allergy to Amoxicillin dentist
- surprising PT visit
- Petty I know, but...
- Update: Jon is BACK IN CCU
- A beautiful autumn day...
- autism/fever related article
- Pressure sore?
- Checked out the new ER yesterday
- Amazing what you can find on Amazon & quick update
- Something cute that Drew said to me...
- Zach had fun on class trip but...
- Update #3: Jon Had Another Seizure
- vacation
- Ack! Zach's got the "crutches then you" part but...
- Jon Update: A Month of Sundays
- Caitlin...going back down...
- Micky - is this the Extreme Makover from your area?
- I could have cried!!!!!
- Jon Update 4/6: A Very Positive Day!
- Grant had a bad seizure in the hydro pool today and the ambulance trip! :(
- We came within a metre/a few feet, from meeting an Australian Olympic swimmer today
- What do you guys think of this bike?
- Options other than plywood?
- Just back from Dr. Zach does NOT have a fracture!
- Jon Update 4/7: Three Rounds With Ali
- OT-- I am sooo mad!
- OT: ? for lawyers
- Jon Update 4/8: HE IS SLEEPING!
- occassional attempt at talking
- Hey all
- Jon Update 4/9: Another Setback
- Extra long seat belt cover :-)
- Jon Update 4/10: BACK TO THE RITZ & OTHER GOOD STUFF!
- Nicks new Seizures
- seizures vs spasm
- this da*# pump!!!
- Easter pictures and check out what I made :)
- OT/Not part of guitar group :(
- Jon Update 4/12: Jon Had A Wonderful Day!
- Happy Birthday Donna Thomson
- Jon Update 4/13: Surgery Tomorrow
- Pericarditis
- Wish us luck...
- WOOHOO.. It works.. kinda... LOL
- Always ask
- my NT boy...I thought
- Jon Update 4/14: Successful Surgery!
- Question about speediest method for drug absorption. Help needed.
- trazodone failure and seizures two days in a row
- Bike news and sucky week
- Please pray for the family of a young man who died from the day centre
- Can a batch of pills be bad?
- OT: Hannah's school picture!
- an Introduction
- Negative EEG results
- Happy Birthday Rachel!
- Ssdi?
- Carly Rides!
- Carly Rides Again!
- Denea
- Caitlin
- Zinc question for the no Zinc, no think folks :)
- Rose, How is Jon?
- Excitement is growing
- Banzel anyone??
- OT-ish: Caren's urology appt...what to ask??
- Have you seen this site? (signing)
- just an update...
- Latest on Caitlin?
- tracy sheppard - harness adaptation?
- anyone with a cougar or combi chair?
- Agency woes again. I absolutely lost it = GRIM
- I'm back!
- Lennox Gastaut Syndrome- web site
- Pics of Kait "on the farm" :-)
- how to sew a onesie :-)
- Jon Update 4/21: Back to Surgery to Stop the Bleeding
- Lisa O
- Had to ask for continuance
- YAY!! Good day at therapy!
- Jon Update 4/22: Snoozing On Earth Day
- It's Here!!!
- Upcoming hospital stay and surgery and ...
- A update on me..............
- Childhood Disruptive Behaviour Disorders
- Pictures- Special Olympics and her new chair
- Jake at Special Olympics :-)
- Oh yeah Zach knows what's important!
- Felbatol Level still low?
- Yep, busy weekend -o/t, Prom tonight
- True Brain Talk...er...Twitter
- O/T..Moving Dad's aunt,not an easy time right now.
- Oh how sad... - Fatal epileptic seizure.
- Need tripods/quadcanes
- Can amyone help me understand my nine month old daughter's MRI
- UGH!!!!!!!!! She has ANOTHER ONE!!!!!!!!!!
- Anyone need a Kaye reverse walker?
- We're back - update - long
- Jon Update 4/27: Hopefully Home On Thursday!
- dilemma of sorts
- ot/ link to picks
- Good news re Betsy
- O/T: Caren's lab results and ultrasound
- NEWSWEEK / Epilepsy Articles
- Get tissue...wanted to share
- Just started Topamax
- Cerebral Atrophy?
- Jimmie's getting a wish
- this week's pieces
- Any of your little ones wear contact lenses?
- O/T Swine Flu Anyone?
- Seizure type
- Caitlin STILL not 100%
- Jon Is Home!!!
- Back from the veeg and Im so confused
- Baby who didn't wake up?
- OT: Question for the Vitamix experts. To cook or not to cook?
- The wiggles and two new words...
- Grant's vitamin D is VERY low. Family doc wants appointment.
- Katie's sick- had a seizure @ doctor office
- Pictures from our Make A Wish trip
- This is so cool! Look what someone did for me!
- Blog name?
- For any of you who have sent NT kids away to college...
- New blog on EPSDT and medicaid rights of our kids
- I can't find her IEP file!
- :-( Found my site bookmarked...
- Appointment with Dr.P left me annoyed
- Well crud, I'm pretty sure that was a seizure
- needed help out...
- Mother's Day cards for US
- Being A Mother
- O/T: What's your worth as a mom?
- Ohhh man, when I fall, I fall...
- Happy Mother's Day to all moms
- carrie...mangosmom
- O/T: I wrote this for another forum I'm on...
- All that work paid off!
- And that was another seizure
- Having your nails done could increase risk of skin cancer.
- OT: I am in shock. Drinking plonk. Valium tablets. Shaking. Your help needed
- Sleep Appointment
- Terribly difficult decision regarding flu injection. What do you think?
- We might be onto something with Grant's allergies. Grant's RIST test interesting
- Strawberry pickin' :-) Feeling better
- Disability Waiver National Senate call-in called for May 13
- bad news all around
- Video on youtube
- Zach got probation and 48 hrs
- Bamm Bamm - cute story...
- hair loss and EGD
- seizures, Sleep doctor and EXCELLENT news about her enclosed bed
- the developmental opthamologist
- Anyone got info on preventing(physically) self biting
- You thought you were ticked before? How's this?
- Caitlin surgery today (yup, again!)
- For Massachusetts Families - Devastating Budget
- feeling worried
- We have decided that Grant will have the flu injection. Here are the reasons.
- Endocrine appointment results
- NACD rendezvous
- He graduates ~ with honors!
- How is Caitlyn?
- Nick starting Keppra tonight
- Feeling annoyed
- Emily's rose bush bloomed!
- Test or not?
- VNS question
- In 6 hours Grant will have the flu injection. PRAYERS PLEASE.
- OT: Nothing in the world as awful as THAT call...
- 10 hours after the Flu injection and Grant is stable.
- jeanette...mike's mom
- Confirmed regression- testing results.
- Neuro appt today
- 33 hours after flu injection. Initial instability but then calmer
- Video of Hannah's eye deviation, possible nystagmus and other movements
- Pretty Clothes :-)
- Have any of you tried a seizure sensing mat? We are trying one.
- OT Autumn (our Bloodhound) lost her battle with Cancer
- autism
- Summer/Hannah's mom
- Has anyone not noticed a difference in lamictal brand vs. generic??
- bored at the hospital...
- Bad and good news. Grant had a nasty seizures :( Seizure mat sensed the seizure :)
- I think Caitlin has the WORST luck!
- mysterious kid
- Way OT: Charlie's baptism portraits!
- Grant had another nasty seizure and the seizure mat didn't pick it up
- OT/ Check out DH!
- Zonisamide
- the deal with Jimmie's seizures
- Thoughts on this rash?
- Finally some respite...maybe
- Does Anone Know?
- oops
- NYTimes article on special ed
- OT: Daddy has suffered a set back and is going into surgery
- Update on Nicholas and Me
- Special Needs Prom
- Roll Call - June 2009
- Is this an unreasonable request?
- update on before school care
- Just had to whine a bit...
- Prayers needed for our dog Buddy!!
- Jake's turn to worry me!!
- We hope to get Grant's brand new wheelchair today
- Grant had a big seizure at the pool. No wheelchair fitting today :(
- Missed the behaviorist today --
- Jimmie bit Charlie
- I learnt something very interesting yesterday from the MICA ambulance officers
- Abdominal Seizures...
- Mickey
- Rosy face
- OT: Daddy still in hospital, white blood cell count is elevated
- Grrrr...so mad I could spit nails!! Aide left 89 yr. old aunt alone all night.
- Thank you thank you thank you from Summer/Hannah's mom
- Just for fun- my sewing room :-)
- Hi, new here . . . a little about my princess
- O/T My latest blog post about motherhood
- Beginning our bathroom remodel!!
- We got to tour overnight camp!
- Make A Wish Benefit today- pics
- Does anyone's child use or has used a Hart Walker
- Update on Jake's rib
- Tyler's sick again
- Anyone know the best metabolic doctor in Atlanta?
- Hydrocephalus Question
- Update
- Prayers/Good Wishes Needed!!
- OT: Kelly's (Jenelle's mum's) hospital address
- Great way to end the year
- O/T: For the Love of Boys
- Manual Wheelchair for 3 yo available
- Come and see pics of Grant's super duper new wheelchair :)
- Ataxia, or another word for suddenly falling?
- freakin' seizures
- For Mary/mpalmer118
- Please Help with a Strange Situation
- Prayers Are Working- Keep Them Coming!
- Swine Flu Has Hit My School...
- I just need a break
- Micky-question on sewing bibs
- Prayers needed my mom is in the hosptal
- Hair Abnormalities anyone?
- school evaluation tomorrow
- O/T Australia.... Perth in paticular.
- Questions about MRSA
- o/t--Prayers please
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