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- Seizures make me want to curse....
- Denae and Moose53 I just love the pics in your aviator and sig!!!
- Testing Accommodations In College
- spinal fusion
- OT How Rude!
- almost off keppra but...
- Wheelchair approved
- More pics of bed
- Paul...Wot Happened?! (St. Kilda match)
- Did I say we give up with the contracting agency. Well we GIVE UP! GIVE UP). GIVE UP!
- Did I say we give up with the contracting agency. Well we GIVE UP! GIVE UP! GIVE UP!
- Nice Holiday Story
- New pics of Timothy!
- Just finished reading "Rex"
- URGENT. DENAE. The names and ages of your children
- Storm damage
- We are ready to sue the contracting agency. Deb can we do that?
- Denae, how is Ri doing??
- Someone please tell me not to worry!!
- If you live in this stupid district or ever move here...
- Today's latest incompetence by the contracting agency
- Slightly OT: Hey Jen (Adam's mum) I have a 'vision'. Please check your email
- Come and see video of Grant at Lilydale Lake, which used to be Lilydale Swamp
- Kind of OT - an achievement
- Will Smith with Riley- just got the "real" picture
- 1/2 day tomorrow?
- OT: My sister in law was on the CBS evening news
- Keep your fingers crossed...
- Christmas lists anyone?
- Denae, I had a dream...
- Grant has lost a bit more weight :( Question for the flaxseed oil mums :)
- Not sure what to think or do..
- ~Hugs for Robin~
- Can't change signature - so here's a new pic
- I had the most wonderful phone call this evening!!!
- Jr TUG at Levine- I wondered what that thing was!
- Sharing a little laughter here....................
- Facebook for Robin, help me out you guys!
- Hey Paul, has your e-mail changed, could you PM it to me again??
- Riley is sick again, more seizures too.
- Facebook guide for Robin et al
- Thankfully home, not feeling good, but home
- Merry Christmas and thanks for all the support you showed me the last few days!!!
- When there is no light at the end of the tunnel...
- Curses, now a fever and seizures too.
- Those of you that have PCA's do you get them Christmas gifts??
- update on me
- I had a meeting with my new advocate today and wanted to update......
- Mic-Key button woes. What is your experience?
- Differing opinions
- For Donna Thomson
- For Robyn, momtoCarlieJae, Carrie, Mangosmom, Heather, Aidan's mom
- Blessed Are You... (Christmas Blessings)
- Are gas stoves common these days??
- Stair Lifts??
- 40 minute temper tantrum?
- COMPETITION WITH PRIZE. Why did 8..... and then 7.... come and visit us?
- Denae, how's Riley doing now?
- OT/ Paul and any other musicians
- Not teething, stomache bug...yuck
- Hey CPChick
- Our absolutely awesome Christmas present. It is going ahead. It is going ahead :)
- Merry Christmas!- pics
- Temperature of 108- and pneumonia
- Merry Christmas everyone from down under
- How to post a video
- OT: Hey ma and Jen, please pm me your email addresses
- I feel like a bad mommy
- So as not to post-nap...angel video comments!
- Holiday e-cards
- Riley update- day 2
- Maybe this will work
- Christmas Pictures- and a mini update
- apparently Mommy looks like a barf bag
- OT - Issues about our kids' medical care
- OT: Hey Denae, I sent you an email via PM
- More and more I think siezures are popping back out
- Donna Thompson, I haven't ask lately on here.......
- Denae - You Inspire Me!
- Been gone for awhile: have a question about Lucy's seizure pattern
- I've been complaining, but hey no seizures!
- Day 1/2 with Grant in the nursing home. Videos of what we did
- {{{{Carrie}}}}
- Ladybug - Morning Episodes
- It's a tough day
- Aspiration --GI issue v/s seizure related
- Took Tyler in for a renal ultrasound this morning
- Very interesting neuro appt---- Rett
- Happy, Happy Birthday Tracy!!!
- Day 2 Grant in respite. Videos of river walk and Alison driving wrong side of road :)
- Dr.P wants to see us Monday.
- I had a great day!!!
- Day 3 Grant in respite. Beach/boat video and glimpse of where we go for our holiday
- Untold Stories of the ER- fever of 108 (on TLC channel)
- The never ending illness
- So who's going to make it to midnight??
- Happy New Year
- Denae, I see you made it til midnight!!
- Day 4 Grant in respite. Off to PowellTown and Noojee and risk taking Videos :)
- Happy Birthday Caitlin sweetie!!!!
- Paul, Skype & Uniting CN
- Uplifting story...man gives his friend a gift
- The Strange Visitor
- Day 5. Grant in respite. Geting ready for holiday and Harry Potter challenge :)
- A man with severe disabilities abandoned on icy NYE bus
- Day 6. Grant in respite. We are off on our holiday
- John Travolta's Son Dies
- Saw the ENT today, GI and Neuro Monday
- Dare I post this.... again?
- Adam's being put on Lamictal
- Sad News..............
- xmas pics
- Welcome home Liz
- Hi everyone! Update on me
- You won't believe what this lady said to me at the mall!
- A bad few days...
- Surgery tomorrow
- FDA Class 1 Recall on Ophthalmic Surgical Device
- They're supposed to back at school today, buy...
- January Roll Call!
- FDA Alerts
- You know you have a medically fragile child when...
- Paula Scott, post when you can re Em's surgery
- Tyler's Appointment
- Todays appointment, starting phenobarb, going back to keto in a few months.
- Dream Weaver
- I think you guys will be proud of me...
- Erin/CPChick
- The Great Escape. lol
- Guess what - another snow day!
- An Update on Me and Good News!!!
- Donna, I have a facebook account now!!
- where's Paul?
- Crazy Weather here, but beautiful rainbow pics
- Lacy-Ataxia
- bt2
- Modified Barium Swallow today- one mystery solved
- Emily is HOME!
- Speaking of crazy weather...
- Ped ordered eeg and another dx :(
- Roller coaster week
- Ethan is 5!
- Does school have to provide a stander?
- Link for Chewys Tubes
- OT: We're almost there!
- next on the list for respite...finally
- Now what do I do?
- We are back from our fantastic holiday. Start saving your download quota :)
- What's a good muscle relaxant for spasticity that wouldn't leave me to drowsy??
- Randiscan
- GI question
- just an interesting note
- Our sig pictures?
- Our holiday. Part 1 of an epic video series :) Lighthouse, accomodation, kangaroo :)
- another cold
- Epic videos of our holiday part 2. The wild KANGAROO in very HIGH resolution for you.
- OT: Fun filters and Quickcam Pro. Video and let's get cracking
- some questions about cerebral palsy
- Update on Katie's AFO/SMO
- Logging off to move..
- 1 week seizure free - OMG!!!!!!!!
- Phenobarbital questions- asthma med interaction?
- dynavox
- Voting again for full federal medicaid funding
- Deleted
- Our holiday part 3. The fantastic Aschombe Maze for Harry Potter
- Summary of Grant's respite at the nursing home mostly good some not so good.
- Anybody got any pancakes??
- Sarahs Birthday "party"- pics
- Insurance Issues
- S.w.a.s.h.
- Scare for the day...
- Need Info with Saliva Management
- Please be thinking of "Nacy" today...
- Charles David Mathes...:)
- Charlie's Picture
- OT: You won't believe what happened....help please!
- Ketogenic Diet, video I just finished with Riley as the star
- Katie's very sick, seizures
- OT: Link to picturesque photos of the Great Lake state
- remind me about topamax pls
- I'm gonna be moshing with 40,000 others tomorrow!
- #1 Agency 2 muckups for start of year 2009
- Blackstrap molasses versus honey. What do you reckon.
- Agency did the right thing tonight at 9.45 pm for a change = remarkable :)
- Diaper Digging ;)
- Paula<How's Miss Em?
- Phenobarbital questions and a seperate question about steroids.
- Are there any physio's out there. Day centre has immobilised Grant?
- It is so cold here...................
- Happy 13th Birthday Jake!!
- Deficits after a super high fever?
- Cerebellar Hypoplasia
- Finding a bath chair
- Urgent Prayers needed
- Genetics appt today.....
- Had an amazing weekend!
- A couple days late, but still enjoyed :-)
- The joys of living independently NOT!!!
- Lauren update
- Make-A-Wish for Riley
- newsvideo: High Tech helps Autistic Kids Communicate in Bay Area
- Can that be 2 weeks seizure free?
- Oh man, I feel so crook
- Pics of Friday's concert
- Need help new med... Rapamycin
- No need to reply...just updating quick
- Stairlift question
- Lauren
- Grant is very unstable and having too many tonic/clonics :(
- Could Grant's flurry of seizures possibly be caused by Flaxseed oil :)
- New member with questions about my little girl
- Snow pictures
- OT: slideshow of Charlie
- Make a Wish
- 12 years ago today...(My CafeMom journal post)
- Our snow pics :-)
- Home after EEG and appointment with the Epi...
- Hello from an old friend!
- Advice on fattening Grant up with some good fats part 1
- OT: Need advice from those in college, or have gone to college, or anyone else
- My day started off BAAAAD, I hope this isn't an omen for the rest of my day!!!
- I don't really ask for this much but
- "or-live" ~ link
- Grant still very unstable and still having too many tonic/clonics :(
- A journalist is coming out today to do an article on Grant swimming :)
- OT/ I'm sick
- Grant is still very unstable and had 4 tonic/clonics today :(
- Dystonia/behavior
- Update on my wheelchair woes!!!
- eeg tomarrow
- another video :) Riley talking to the MAW lady
- We have a new PCA!
- Betsy had an accident
- Back in the ER...
- Question/kinda OT
- In the process of moving..
- Grant was rock stable yesterday. Not that stable today. Christian Content.
- Can you help me figure this out?
- Deb (Carly's Ma)
- "cute" emotional mess. lol
- Any word on Grant?
- We are now at 3 weeks seizure free!
- Grant's latest. Back to being extremely unstable
- Denae and anyone having done GI barium swallow test
- Sad realisation...
- Ambulance will be phoned when Grant has next tonic/clonic
- Tyler has pneumonia
- Grant still home, but very unstable. Extremely hot weather and Alison away = complex
- EEG results
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